Literature DB >> 21393285

Disability and narrative: new directions for medicine and the medical humanities.

Rebecca Garden1.   

Abstract

People with disabilities are a large minority that disproportionately seeks medical care. However, disability is relatively neglected in medical education and practice, and disabled people experience troubling differences and even disparities in healthcare. Practitioners can help improve healthcare for disabled people through disability studies, a multi-disciplinary field of enquiry that draws on the experiences and perspectives of people with disabilities to address discrimination. This article outlines a disability studies perspective on healthcare, specifically the rejection of the medicalisation of disability and difference in favour of an understanding of disability that focuses on social factors that disable, such as stigmatisation and a lack of accommodation. The 'social model' of disability can be expanded to chronic illness and to the broader work of the medial humanities. The author argues that narrative, particularly first-person accounts, provide a critical resource by representing the point of view of people with disabilities and by offering a means of examining the social context and social determinants of disability. The author examines specific conventions of narrative, the dominant plotlines such as the triumph over adversity, that predetermine experiences of disability and illness. Through disability studies and critical examinations of narrative informed by disability studies, practitioners can provide better care for patients with disabilities and work as allies towards more equitable relations in the clinic.

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Year:  2010        PMID: 21393285     DOI: 10.1136/jmh.2010.004143

Source DB:  PubMed          Journal:  Med Humanit        ISSN: 1468-215X


  5 in total

1.  The limits of narrative: provocations for the medical humanities.

Authors:  Angela Woods
Journal:  Med Humanit       Date:  2011-10-28

2.  COVID-19 narratives and layered temporality.

Authors:  Jessica Howell
Journal:  Med Humanit       Date:  2022-05-18

3.  The medical reshaping of disabled bodies as a response to stigma and a route to normality.

Authors:  Janice McLaughlin
Journal:  Med Humanit       Date:  2017-02-06

4.  Artificial Intelligence and Medical Humanities.

Authors:  Kirsten Ostherr
Journal:  J Med Humanit       Date:  2022-06

5.  Digital hermeneutics: scaled readings of online depression discourses.

Authors:  Inge van de Ven; Tom van Nuenen
Journal:  Med Humanit       Date:  2021-10-14
  5 in total

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