Literature DB >> 21383760

International spinal cord injury female sexual and reproductive function basic data set.

M S Alexander1, F Biering-Sørensen, S Elliott, M Kreuter, J Sønksen.   

Abstract

OBJECTIVE: To create the International Spinal Cord Injury (SCI) Female Sexual and Reproductive Function Basic Data Set within the International SCI Data Sets.
SETTING: An international working group.
METHODS: The draft of the data set was developed by an international working group consisting of members appointed by the International Spinal Cord Society (ISCoS), the American Spinal Injury Association (ASIA), and a representative from the Executive Committee of the International SCI Standards and Data Sets. The data set was developed in an iterative process with review and comments by members of the Executive Committee of the International SCI Standards and Data Sets, ISCoS Scientific Committee, ASIA Board and the ISCoS Council, as well as all interested organizations and individuals. In addition, the data set was posted for 2 months at the ISCoS and ASIA websites for comments. ISCoS and ASIA approved the final version of the data set. To make the data set uniform, each variable and each response category within each variable have been specifically designed to promote the collection and reporting of comparable minimal data.
RESULTS: Variables included in the International SCI Female Sexual and Reproductive Function Basic Data Set are as follows: date of data collection, interest in discussing sexual issues, sexual issues unrelated to spinal cord lesion, sexual dysfunction related to spinal cord lesion, psychogenic genital arousal, reflex genital arousal, orgasmic function and menstruation. Complete instruction for data collection, data sheet and training cases are available at the websites of ISCoS (http://www.iscos.org.uk) and ASIA (http://www.asia-spinalinjury.org).

Entities:  

Mesh:

Year:  2011        PMID: 21383760     DOI: 10.1038/sc.2011.7

Source DB:  PubMed          Journal:  Spinal Cord        ISSN: 1362-4393            Impact factor:   2.772


  18 in total

1.  Using the Spinal Cord Injury Common Data Elements.

Authors:  Fin Biering-Sørensen; Susan Charlifue; Michael J Devivo; Stacie T Grinnon; Naomi Kleitman; Yun Lu; Joanne Odenkirchen
Journal:  Top Spinal Cord Inj Rehabil       Date:  2012

Review 2.  Common data elements for spinal cord injury clinical research: a National Institute for Neurological Disorders and Stroke project.

Authors:  F Biering-Sørensen; S Alai; K Anderson; S Charlifue; Y Chen; M DeVivo; A E Flanders; L Jones; N Kleitman; A Lans; V K Noonan; J Odenkirchen; J Steeves; K Tansey; E Widerström-Noga; L B Jakeman
Journal:  Spinal Cord       Date:  2015-02-10       Impact factor: 2.772

3.  Implementation of a Standardized Dataset for Collecting Information on Patients With Spinal Cord Injury.

Authors:  Janneke Nachtegaal; Sacha A van Langeveld; H Slootman; Marcel W M Post
Journal:  Top Spinal Cord Inj Rehabil       Date:  2018

4.  Progress of the Dutch Spinal Cord Injury Database: Completeness of Database and Profile of Patients Admitted for Inpatient Rehabilitation in 2015.

Authors:  Marcel W M Post; Janneke Nachtegaal; Sacha A van Langeveld; Maureen van de Graaf; Willemijn X Faber; Ellen H Roels; Coen A M van Bennekom
Journal:  Top Spinal Cord Inj Rehabil       Date:  2018

5.  International spinal cord injury male sexual function and female sexual and reproductive function basic data sets-version 2.0.

Authors:  Marcalee S Alexander; Peter W New; Fin Biering-Sørensen; Frederique Courtois; Giulio Del Popolo; Stacy Elliott; Carlotte Kiekens; Lawrence Vogel; Jean G Previnaire
Journal:  Spinal Cord Ser Cases       Date:  2017-08-10

Review 6.  Orgasm and SCI: what do we know?

Authors:  Marcalee Alexander; Lesley Marson
Journal:  Spinal Cord       Date:  2017-12-20       Impact factor: 2.772

Review 7.  Relevance of the international spinal cord injury basic data sets to youth: an Inter-Professional review with recommendations.

Authors:  A Carroll; L C Vogel; K Zebracki; V K Noonan; F Biering-Sørensen; M J Mulcahey
Journal:  Spinal Cord       Date:  2017-02-28       Impact factor: 2.772

8.  Impact of bladder, bowel and sexual dysfunction on health status of people with thoracolumbar spinal cord injuries living in the community.

Authors:  So Eyun Park; Stacy Elliott; Vanessa K Noonan; Nancy P Thorogood; Nader Fallah; Allan Aludino; Marcel F Dvorak
Journal:  J Spinal Cord Med       Date:  2016-08-31       Impact factor: 1.985

9.  Development of a comprehensive survey of sexuality issues including a self-report version of the International Spinal Cord Injury sexual function basic data sets.

Authors:  P W New; K E Currie
Journal:  Spinal Cord       Date:  2015-12-08       Impact factor: 2.772

Review 10.  Women's Sexual Health and Reproductive Function After SCI.

Authors:  Frédérique Courtois; Marcalee Alexander; Amie B Jackson McLain
Journal:  Top Spinal Cord Inj Rehabil       Date:  2017
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