Literature DB >> 21382946

Solid-organ transplantation in childhood: transitioning to adult health care.

Christopher LaRosa1, Caryle Glah, H Jorge Baluarte, Kevin E C Meyers.   

Abstract

Pediatric solid-organ transplantation is an increasingly successful treatment for solid-organ failure. With dramatic improvements in patient survival rates over the last several decades, there has been a corresponding emergence of complications attributable to pretransplant factors, transplantation itself, and the management of transplantation with effective immunosuppression. The predominant solid-organ transplantation sequelae are medical and psychosocial. These sequelae have a substantial effect on transition to adult care; as such, hurdles to successful transition of care arise from the patients, their families, and pediatric and adult health care providers. Crucial to successful transitioning is the ongoing development of a sense of autonomy and responsibility for one's own care. In this article we address the barriers to transitioning that occur with long-term survival in pediatric solid-organ transplantation. Although a particular transitioning model is not promoted, practical tools and strategies that contribute to successful transitioning of pediatric patients who have received a transplant are suggested.

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Year:  2011        PMID: 21382946     DOI: 10.1542/peds.2010-1232

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  14 in total

Review 1.  Transition of the adolescent transplant patient to adult care.

Authors:  Emily M Fredericks; M James Lopez
Journal:  Clin Liver Dis (Hoboken)       Date:  2013-10-30

2.  Health-related quality of life in long-term survivors of paediatric liver transplantation.

Authors:  Stacey V Konidis; Alexander Hrycko; Scott Nightingale; Eberhard Renner; Leslie Lilly; George Therapondos; Ann Fu; Yaron Avitzur; Vicky Lee Ng
Journal:  Paediatr Child Health       Date:  2015-05       Impact factor: 2.253

Review 3.  Generating intestinal tissue from stem cells: potential for research and therapy.

Authors:  Jonathan C Howell; James M Wells
Journal:  Regen Med       Date:  2011-11       Impact factor: 3.806

4.  Transition of young people with chronic conditions: a cross-sectional study of patient perceptions before and after transfer from pediatric to adult health care.

Authors:  Christoph Rutishauser; Susan M Sawyer; Anne-Emmanuelle Ambresin
Journal:  Eur J Pediatr       Date:  2014-03-09       Impact factor: 3.183

Review 5.  TRANSITION of Pediatric Liver Transplant Patients to Adult Care: a Review.

Authors:  James P Stevens; Lori Hall; Nitika Arora Gupta
Journal:  Curr Gastroenterol Rep       Date:  2021-01-29

Review 6.  Pediatric lung transplantation.

Authors:  Christian Benden
Journal:  J Thorac Dis       Date:  2017-08       Impact factor: 2.895

7.  Pediatric Heart Transplantation: Transitioning to Adult Care (TRANSIT): Feasibility of a Pilot Randomized Controlled Trial.

Authors:  Kathleen L Grady; Adin-Cristian Andrei; Tamara Shankel; Richard Chinnock; Shelley D Miyamoto; Amrut V Ambardekar; Allen Anderson; Linda Addonizio; Farhana Latif; Debra Lefkowitz; Lee R Goldberg; Seth A Hollander; Michael Pham; Kathleen Van't Hof; Jill Weissberg-Benchell; Clyde Yancy; Menghan Liu; Nichole Melody; Elfriede Pahl
Journal:  J Card Fail       Date:  2019-07-02       Impact factor: 5.712

8.  Quality Improvement Targeting Adherence During the Transition from a Pediatric to Adult Liver Transplant Clinic.

Authors:  Emily M Fredericks; John C Magee; Sally J Eder; Jessica R Sevecke; Dawn Dore-Stites; Victoria Shieck; M James Lopez
Journal:  J Clin Psychol Med Settings       Date:  2015-09

9.  Growing Up: Not an Easy Transition-Perspectives of Patients and Parents regarding Transfer from a Pediatric Liver Transplant Center to Adult Care.

Authors:  Sona Chandra; Shannon Luetkemeyer; Rene Romero; Nitika Arora Gupta
Journal:  Int J Hepatol       Date:  2015-11-22

10.  "It's What I Have, It's Not Who I Am": A Qualitative Study of Social Support in Education/Employment Settings and Transition Readiness of Young Adults with End-Stage Renal Disease.

Authors:  Sophie Rupp; Cynthia Fair; Hannah Korycinski; Maria Ferris
Journal:  Int J Environ Res Public Health       Date:  2021-06-19       Impact factor: 3.390

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