Literature DB >> 21372845

Linking maternity data for England, 2005-06: methods and data quality.

Nirupa Dattani1, Preeti Datta-Nemdharry, Alison Macfarlane.   

Abstract

INTRODUCTION: Maternity Hospital Episode Statistics (HES) data were linked to birth registration and NHS Numbers for Babies (NN4B) data to bring together some key demographic and clinical data items not otherwise available at a national level. This project added to earlier work involving linkage of birth registration records to NN4B records.
METHODS: Birth registration and NN4B records were linked to Maternity HES delivery records and also Maternity HES baby records using the NHS Number or other indirect identifiers if NHS Number was missing.Data quality and completeness of Maternity HES were assessed in relation to birth registration data wherever possible. For information not collected at registration, NN4B data were used to validate quality of Maternity HES.
RESULTS: Overall, 91 per cent of Maternity HES delivery records could be linked to the birth registration/NHS Numbers for Babies records and 84 per cent of Maternity HES baby records were linked.In 2005 only 3 per cent of Maternity HES records had mother's NHS number missing, compared with 30 per cent in the NN4B dataset. This did not reflect the extent to which Maternity HES data items were missing or discordant. Over a quarter of all linked Maternity HES records for singleton babies had one or more of the following data items missing: birthweight, gestational age, birth status, sex, and date of birth of the baby. On the other hand, for data items where information was stated such as birthweight, birth status, and sex for singleton babies, there was good agreement between Maternity HES and linked birth registration and NN4B data.Although NN4B records the ethnic category of the baby as defined by the mother, and Maternity HES records mother's ethnic category, 87 per cent of the linked records had the same ethnic group.
CONCLUSION: Even though a good linkage rate was obtained, the method used will be simplified before data for 2007 are linked. To gain the maximum benefit from this linkage in future years, improvements are urgently needed in the quality and completeness of the data contained in Maternity HES.List of Tables, 55.

Mesh:

Year:  2011        PMID: 21372845     DOI: 10.1057/hsq.2011.3

Source DB:  PubMed          Journal:  Health Stat Q        ISSN: 1465-1645


  18 in total

1.  Impact of risk factors on the timing of first postpartum venous thromboembolism: a population-based cohort study from England.

Authors:  Alyshah Abdul Sultan; Matthew J Grainge; Joe West; Kate M Fleming; Catherine Nelson-Piercy; Laila J Tata
Journal:  Blood       Date:  2014-08-25       Impact factor: 22.113

2.  Involving service users in the Birth Timing project, a data linkage study analysing the timing of births and their outcomes.

Authors:  Mary Newburn; Miranda Scanlon; Rachel Plachcinski; Alison Jill Macfarlane
Journal:  Int J Popul Data Sci       Date:  2020-11-02

3.  Birth outcomes for African and Caribbean babies in England and Wales: retrospective analysis of routinely collected data.

Authors:  Preeti Datta-Nemdharry; Nirupa Dattani; Alison J Macfarlane
Journal:  BMJ Open       Date:  2012-05-22       Impact factor: 2.692

Review 4.  Linking databases on perinatal health: a review of the literature and current practices in Europe.

Authors:  M Delnord; K Szamotulska; A D Hindori-Mohangoo; B Blondel; A J Macfarlane; N Dattani; C Barona; S Berrut; I Zile; R Wood; L Sakkeus; M Gissler; J Zeitlin
Journal:  Eur J Public Health       Date:  2016-01-10       Impact factor: 3.367

5.  Linkage of Maternity Hospital Episode Statistics data to birth registration and notification records for births in England 2005-2014: Quality assurance of linkage of routine data for singleton and multiple births.

Authors:  Gillian Harper
Journal:  BMJ Open       Date:  2018-03-01       Impact factor: 2.692

6.  Pregnancy and Labor Complications in Female Survivors of Childhood Cancer: The British Childhood Cancer Survivor Study.

Authors:  Raoul C Reulen; Chloe J Bright; David L Winter; Miranda M Fidler; Kwok Wong; Joyeeta Guha; Julie S Kelly; Clare Frobisher; Angela B Edgar; Roderick Skinner; W Hamish B Wallace; Mike M Hawkins
Journal:  J Natl Cancer Inst       Date:  2017-11-01       Impact factor: 13.506

7.  Linkage of Maternity Hospital Episode Statistics data to birth registration and notification records for births in England 2005-2014: methods. A population-based birth cohort study.

Authors:  Nirupa Dattani; Alison Macfarlane
Journal:  BMJ Open       Date:  2018-02-15       Impact factor: 2.692

8.  Evaluating maternity care using national administrative health datasets: how are statistics affected by the quality of data on method of delivery?

Authors:  Hannah E Knight; Ipek Gurol-Urganci; Tahir A Mahmood; Allan Templeton; David Richmond; Jan H van der Meulen; David A Cromwell
Journal:  BMC Health Serv Res       Date:  2013-05-30       Impact factor: 2.655

Review 9.  The incidence of first venous thromboembolism in and around pregnancy using linked primary and secondary care data: a population based cohort study from England and comparative meta-analysis.

Authors:  Alyshah Abdul Sultan; Laila J Tata; Matthew J Grainge; Joe West
Journal:  PLoS One       Date:  2013-07-29       Impact factor: 3.240

10.  Investigating increased admissions to neonatal intensive care in England between 1995 and 2006: data linkage study using Hospital Episode Statistics.

Authors:  Andrei S Morgan; Neil Marlow; Kate Costeloe; Elizabeth S Draper
Journal:  BMC Med Res Methodol       Date:  2016-05-20       Impact factor: 4.615

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