Literature DB >> 21332304

'The web is not enough, it's a base'--an explorative study of what needs a web-based support system for young carers must meet.

Mikael Elf1, Ingela Skärsäter, Barbro Krevers.   

Abstract

The aim of this study was to gain knowledge about the specific needs that a web-based support system for young carers (YCs) must meet. Twelve young people with experience of caring for and supporting a close friend, partner or relative with mental illness (MI) were interviewed about their life situation, support needs and opinions about a hypothetical web-based support system. The transcribed interviews were analysed using content analysis. The analysed data were organised into three themes relating to support needs, each including a number of sub-themes: knowledge--understanding MI, managing the mentally ill person and self-care; communication--shared experiences, advice and feedback, and befriending; and outside involvement--acute relief, structured help and health care commitments. Web-based support for YCs may be a suitable way to meet the need for knowledge and to meet some of the needs for communication. We have outlined a concept of a geographically anchored web support to meet the need for befriending, facilitate connections to health and social care, and increase understanding and interaction between the parties involved. Further research is needed to corroborate the results.

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Year:  2011        PMID: 21332304     DOI: 10.3109/17538157.2011.553298

Source DB:  PubMed          Journal:  Inform Health Soc Care        ISSN: 1753-8157            Impact factor:   2.439


  7 in total

1.  Parents of adolescents with type 1 diabetes--their views on information and communication needs and internet use. A qualitative study.

Authors:  Sam Nordfeldt; Teresia Ängarne-Lindberg; Maria Nordwall; Barbro Krevers
Journal:  PLoS One       Date:  2013-04-23       Impact factor: 3.240

2.  The Unsteady Mainstay of the Family: Now Adult Children's Retrospective View on Social Support in Relation to Their Parent's Heart Transplantation.

Authors:  Susanna Agren; Bodil Ivarsson; Helén Rönning
Journal:  Nurs Res Pract       Date:  2014-11-06

3.  Need of support in people with chronic obstructive pulmonary disease.

Authors:  Lilas Ali; Andreas Fors; Inger Ekman
Journal:  J Clin Nurs       Date:  2018-02-27       Impact factor: 3.036

4.  Effects of person-centred care via telephone on self-efficacy in patients with chronic obstructive pulmonary disease: Subgroup analysis of a randomized controlled trial.

Authors:  Lilas Ali; Sara Wallström; Inger Ekman; Karl Swedberg; Andreas Fors
Journal:  Nurs Open       Date:  2020-11-24

5.  The awareness, visibility and support for young carers across Europe: a Delphi study.

Authors:  Henk Herman Nap; Renske Hoefman; Nynke de Jong; Lieke Lovink; Ludo Glimmerveen; Feylyn Lewis; Sara Santini; Barbara D'Amen; Marco Socci; Licia Boccaletti; Giulia Casu; Alessandra Manattini; Rosita Brolin; Karina Sirk; Valentina Hlebec; Tatjana Rakar; Tjasa Hudobivnik; Agnes Leu; Fabian Berger; Lennart Magnusson; Elizabeth Hanson
Journal:  BMC Health Serv Res       Date:  2020-10-07       Impact factor: 2.655

6.  Psychosocial resources contributing to resilience in Austrian young carers-A study using photo novella.

Authors:  Martin Matzka; Martin Nagl-Cupal
Journal:  Res Nurs Health       Date:  2020-10-30       Impact factor: 2.228

Review 7.  Growing up with a Chronically Ill Family Member-The Impact on and Support Needs of Young Adult Carers: A Scoping Review.

Authors:  Hinke M van der Werf; Marie Louise A Luttik; Alice de Boer; Petrie F Roodbol; Wolter Paans
Journal:  Int J Environ Res Public Health       Date:  2022-01-13       Impact factor: 3.390

  7 in total

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