Literature DB >> 21317956

The voice of experience: results from Cancer Control New Zealand's first national cancer care survey.

Inga O'Brien1, Emma Britton, Diana Sarfati, Wayne Naylor, Barry Borman, Lis Ellison-Loschmann, Andrew Simpson, Craig Tamblyn, Chris Atkinson.   

Abstract

AIMS: The 2009 Cancer Care Survey aimed to gather information from patients about their experiences receiving outpatient cancer care.
METHODS: In mid-2009, Cancer Control New Zealand sent an NRC+Picker postal survey to a stratified sample of 3251 eligible adults, who had received outpatient cancer care between October 2008 and March 2009. Eight cancer treatment facilities across New Zealand provided patient lists from which potential respondents were selected.
RESULTS: The final response rate to the survey was 68%. Most of the patients surveyed responded very positively to questions related to specialist care coordination (91% positive response; 95%CI: 90-93), the level of privacy (87% positive response; 95%CI: 85-89), and the dignity and respect provided by healthcare professionals (86% positive response; 95%CI: 85-88). However, patients tended to be much less positive about the level of information they received on the effects of cancer treatment on their day-to-day life (responses ranging between 30% and 40% positive) and the level of emotional support provided (36% positive response; 95%CI: 33-39). Responses from different cancer services tended to follow similar patterns, although for twelve questions there was at least a 20% difference in response between services.
CONCLUSIONS: Overall, patients rated their outpatient cancer care experiences as positive, but important gaps exist in the provision of information, emotional support, and treating patients within the context of their living situation. Cancer patient experience surveys can achieve high response rates and generate useful information on patient perceptions of their care. This data can be used to inform quality improvement efforts at both national and cancer treatment service levels.

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Year:  2010        PMID: 21317956

Source DB:  PubMed          Journal:  N Z Med J        ISSN: 0028-8446


  4 in total

1.  Wide-ranging impacts reported by NZ cancer survivors: is supporting cancer survivor resilience a health sector role?

Authors:  Inga O'Brien; Louise Signal; Diana Sarfati
Journal:  Support Care Cancer       Date:  2017-10-31       Impact factor: 3.603

Review 2.  A systematic review of barriers to optimal outpatient specialist services for individuals with prevalent chronic diseases: what are the unique and common barriers experienced by patients in high income countries?

Authors:  Elizabeth A Fradgley; Christine L Paul; Jamie Bryant
Journal:  Int J Equity Health       Date:  2015-06-09

3.  System-Wide and Group-Specific Health Service Improvements: Cross-Sectional Survey of Outpatient Improvement Preferences and Associations with Demographic Characteristics.

Authors:  Elizabeth A Fradgley; Christine L Paul; Jamie Bryant; Alison Zucca; Christopher Oldmeadow
Journal:  Int J Environ Res Public Health       Date:  2018-01-23       Impact factor: 3.390

4.  Radiation oncology outpatient perceptions of patient-centred care: a cross-sectional survey.

Authors:  Lisa J Mackenzie; Rob W Sanson-Fisher; Mariko L Carey; Catherine A D'Este
Journal:  BMJ Open       Date:  2013-02-19       Impact factor: 2.692

  4 in total

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