Literature DB >> 21292426

Studying the social construction of cancer-related fatigue experience: the heuristic value of Ethnoscience.

Guendalina Graffigna1, Elena Vegni, Serena Barello, Karin Olson, Claudio A Bosio.   

Abstract

OBJECTIVES: Patients' lived experience of illness and health is receiving increased attention in the medical field. Understanding patients' perspective and experiences is an undoubted asset for efficient health interventions and improved clinical concordance. Patients' experiences of care and cure, however, are influenced by the cultural setting in which these experiences take place. This implies that health interventions should be "ecological" and attuned to the specific sociocultural context of the patients.
METHODS: Our research group is conducting a cross-cultural qualitative study aimed ad exploring how fatigue (a symptom very common in cancer) is perceived and manifested by patients in different countries (Canada, Thailand, England and Italy). In order to achieve this, the study was design according to the method of Ethnoscience, that appeared to us the best suited to explore the meanings that patients attribute to their state and the linguistic patterns they use to describe it. In this paper we will describe in details the process of Ethnoscience and will discuss the heuristic value of this research approach.
RESULTS: Ethnoscience was an effective research strategy for exploring how beliefs and values shape symptoms and the behavioural manifestations of cancer related fatigue.
CONCLUSIONS: This paper discusses the heuristic value of Ethnoscience and its applicability to the study of health relate topics, particularly those where issues of social construction are important. PRACTICAL IMPLICATIONS: Ethnoscience is a promising and innovative research approach, able to cast light on the way people experience and make sense of their illness.
Copyright © 2011 Elsevier Ireland Ltd. All rights reserved.

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Year:  2011        PMID: 21292426     DOI: 10.1016/j.pec.2010.12.017

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  9 in total

Review 1.  Qualitative research into the symptom experiences of adult cancer patients after treatments: a systematic review and meta-synthesis.

Authors:  A E Bennion; A Molassiotis
Journal:  Support Care Cancer       Date:  2012-09-13       Impact factor: 3.603

2.  Engaging patients to recover life projectuality: an Italian cross-disease framework.

Authors:  Serena Barello; Guendalina Graffigna
Journal:  Qual Life Res       Date:  2014-11-06       Impact factor: 4.147

Review 3.  The life experience of nutrition impact symptoms during treatment for head and neck cancer patients: a systematic review and meta-synthesis.

Authors:  Valentina Bressan; Annamaria Bagnasco; Giuseppe Aleo; Gianluca Catania; Milko P Zanini; Fiona Timmins; Loredana Sasso
Journal:  Support Care Cancer       Date:  2017-02-15       Impact factor: 3.603

4.  Measuring patient activation in Italy: Translation, adaptation and validation of the Italian version of the patient activation measure 13 (PAM13-I).

Authors:  Guendalina Graffigna; Serena Barello; Andrea Bonanomi; Edoardo Lozza; Judith Hibbard
Journal:  BMC Med Inform Decis Mak       Date:  2015-12-23       Impact factor: 2.796

5.  Patient experiences of engagement with care plans and healthcare professionals' perceptions of that engagement.

Authors:  Mohamad Al-Tannir; Fahad AlGahtani; Amani Abu-Shaheen; Sawsan Al-Tannir; Isamme AlFayyad
Journal:  BMC Health Serv Res       Date:  2017-12-29       Impact factor: 2.655

6.  An Educational Intervention to Train Professional Nurses in Promoting Patient Engagement: A Pilot Feasibility Study.

Authors:  Serena Barello; Guendalina Graffigna; Giuliana Pitacco; Maila Mislej; Maurizio Cortale; Livio Provenzi
Journal:  Front Psychol       Date:  2017-01-10

7.  "Co-production Compass" (COCO): An Analytical Framework for Monitoring Patient Preferences in Co-production of Healthcare Services in Mental Health Settings.

Authors:  Guendalina Graffigna; Serena Barello; Lorenzo Palamenghi; Fabio Lucchi
Journal:  Front Med (Lausanne)       Date:  2020-07-03

8.  Revisiting the quantitative-qualitative-mixed methods labels: Research questions, developments, and the need for replication.

Authors:  Jimmie Leppink
Journal:  J Taibah Univ Med Sci       Date:  2017-01-05

9.  Patient engagement as an emerging challenge for healthcare services: mapping the literature.

Authors:  Serena Barello; Guendalina Graffigna; Elena Vegni
Journal:  Nurs Res Pract       Date:  2012-10-31
  9 in total

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