Literature DB >> 21281314

Shifting normalities: interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis.

Tessa Sanderson1, Michael Calnan, Marianne Morris, Pam Richards, Sarah Hewlett.   

Abstract

Biographical disruption and related concepts have been widely applied in chronic illness. Different conceptualisations of normalisation have also been proposed in order to explain individuals' diverse responses to illness on their biography, but as yet, not clearly related to changing bodily experience or normalisation of symptoms. This article aims to examine the relevance of these concepts in rheumatoid arthritis (RA), an unpredictable autoinflammatory disease characterised by painful and swollen joints, disability, fatigue and joint damage. Interviews were conducted with 23 people living with RA, and analysed using Framework, to enable people's whole narratives and context to be considered. Six typologies of normality emerged from the data: disrupted; struggling to maintain; fluctuating; resetting; returning; and continuing normality. Multiple normalities were often present in individuals' narratives, with one normality typology usually dominating at the time of the interview. The typologies connect to several biographical concepts, and instances of 'biographical reinstatement' were also found, where participants described returning to normal life, through perceived effective medication rather than reconceptualisation of health. The concept of 'shifting normalities' is proposed, providing a dynamic explanatory model of chronic illness that captures the interaction of changing conceptions of a normal life and the normalisation of symptoms.
© 2011 The Authors. Sociology of Health & Illness © 2011 Foundation for the Sociology of Health & Illness/Blackwell Publishing Ltd.

Entities:  

Mesh:

Year:  2011        PMID: 21281314     DOI: 10.1111/j.1467-9566.2010.01305.x

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  23 in total

1.  Randomized clinical trials as reflexive-interpretative process in patients with rheumatoid arthritis: a qualitative study.

Authors:  Mercedes de Jorge; Sonia Parra; Jenny de la Torre-Aboki; Gabriel Herrero-Beaumont
Journal:  Rheumatol Int       Date:  2015-01-31       Impact factor: 2.631

Review 2.  Patient reported outcomes in rheumatoid arthritis clinical trials.

Authors:  Ana-Maria Orbai; Clifton O Bingham
Journal:  Curr Rheumatol Rep       Date:  2015-04       Impact factor: 4.592

3.  It's like a juggling act: rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes.

Authors:  Caroline A Flurey; Marianne Morris; Pam Richards; Rodney Hughes; Sarah Hewlett
Journal:  Rheumatology (Oxford)       Date:  2013-12-19       Impact factor: 7.580

4.  Patient-initiated research in rheumatic diseases in Sweden--dignity, identity and quality of life in focus when patients set the research agenda.

Authors:  U Bergsten; A-M Andrey; L Bottner; M Nylander; G Persson; E Petersson; S Bergman
Journal:  Musculoskeletal Care       Date:  2014-04-30

5.  Patients' views on the causes of their polymyalgia rheumatica: a content analysis of data from the PMR Cohort Study.

Authors:  Maatla Tshimologo; Benjamin Saunders; Sara Muller; Christian D Mallen; Samantha L Hider
Journal:  BMJ Open       Date:  2017-01-25       Impact factor: 2.692

6.  Adapting to ulcerative colitis to try to live a 'normal' life: a qualitative study of patients' experiences in the Midlands region of England.

Authors:  Christel McMullan; Thomas D Pinkney; Laura L Jones; Laura Magill; Dmitri Nepogodiev; Shri Pathmakanthan; Rachel Cooney; Jonathan M Mathers
Journal:  BMJ Open       Date:  2017-08-21       Impact factor: 2.692

7.  Reconstructing normality following the diagnosis of a childhood chronic disease: does "rare" make a difference?

Authors:  Evi Germeni; Isabella Vallini; Mario G Bianchetti; Peter J Schulz
Journal:  Eur J Pediatr       Date:  2018-01-16       Impact factor: 3.183

8.  A Qualitative Study: Hypertension Stigma Among Black Women.

Authors:  Willie M Abel; Telisa Spikes; Danice B Greer
Journal:  J Cardiovasc Nurs       Date:  2021 Mar-Apr 01       Impact factor: 2.083

Review 9.  Patients' experiences of deep brain stimulation for Parkinson's disease: a qualitative systematic review and synthesis.

Authors:  J Mathers; C Rick; C Jenkinson; R Garside; H Pall; R Mitchell; S Bayliss; L L Jones
Journal:  BMJ Open       Date:  2016-06-23       Impact factor: 2.692

10.  Being as Normal as Possible: How Young People Ages 16-25 Years Evaluate the Risks and Benefits of Treatment for Inflammatory Arthritis.

Authors:  Ruth I Hart; Janet E McDonagh; Ben Thompson; Helen E Foster; Lesley Kay; Andrea Myers; Tim Rapley
Journal:  Arthritis Care Res (Hoboken)       Date:  2016-07-28       Impact factor: 4.794

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