Literature DB >> 21278669

Accessing vulnerable research populations: an experience with gatekeepers of ethical approval.

Susan Walker1, Sue Read.   

Abstract

Accessing vulnerable populations for research purposes can be difficult, as participants must be sheltered from research that might be insensitive, intrusive, and potentially distressing. People diagnosed with a life-limiting condition may be vulnerable, and involving such people in research samples may be fraught with difficulties. Nevertheless, it is important that these vulnerable populations participate in health and social-care research so that their requirements and opinions can be learnt. This paper describes an experience of proceeding through an ethical approval process for a proposed qualitative research study into the preferred place of death of a group of potentially vulnerable hospice patients. Research of this nature had never been undertaken at the hospice before, and the researchers expected to encounter a degree and variety of gatekeeping when seeking access to this sensitive population.

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Year:  2011        PMID: 21278669     DOI: 10.12968/ijpn.2011.17.1.14

Source DB:  PubMed          Journal:  Int J Palliat Nurs        ISSN: 1357-6321


  5 in total

1.  The provision of generalist and specialist palliative care for patients with non-malignant respiratory disease in the North and Republic of Ireland: a qualitative study.

Authors:  Clare Mc Veigh; Joanne Reid; Philip Larkin; Sam Porter; Peter Hudson
Journal:  BMC Palliat Care       Date:  2017-07-11       Impact factor: 3.234

Review 2.  Dying persons' perspectives on, or experiences of, participating in research: An integrative review.

Authors:  Melissa J Bloomer; Alison M Hutchinson; Laura Brooks; Mari Botti
Journal:  Palliat Med       Date:  2017-12-13       Impact factor: 4.762

3.  Improving the waiting times within a hospice breathlessness service.

Authors:  Caroline Sime; Stuart Milligan; Kevin Donal Rooney
Journal:  BMJ Open Qual       Date:  2019-05-29

4.  Critical methodological considerations in recruiting and engaging non-native English speaking workers with a head injury: a Canadian perspective.

Authors:  B Nowrouzi-Kia; B Sharma; J Lewko; A Colantonio
Journal:  BMC Res Notes       Date:  2020-03-30

5.  Co-Design of an Evidenced Informed Service Model of Integrated Palliative Care for Persons Living with Severe Mental Illness: A Qualitative Exploratory Study.

Authors:  Marianne Tinkler; Joanne Reid; Kevin Brazil
Journal:  Healthcare (Basel)       Date:  2021-12-09
  5 in total

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