Literature DB >> 21169209

'The family is part of the treatment really': a qualitative exploration of collective health narratives in families.

Antje Lindenmeyer1, Frances Griffiths, Jean Hodson.   

Abstract

Clinicians are increasingly asking questions about family history to inform decision making, but the quality of decisions rests on the quality of information provided by the patient. In families with genetically transmitted diseases, research has found a strong collective understanding of inheritance and risk, developed through constant communication between family members. Here, we explore whether there are similar processes in families with more common conditions like heart disease, asthma or osteo-arthritis. From in-depth interviews with lay people, we found that families created a culture of 'health talk', especially between sisters. Caring for other family members was demonstrated through sharing vital health information; on the other hand care could be shown by not worrying family members by talking about possibly inherited illness. Patterns of inheritance and health were talked about in participants' families (resemblance, similar conditions and affected body areas). From these, a picture developed of what the family was 'like' in health terms. Overall, experiential knowledge and family narrative was interwoven with expert discourse to form a complex understanding of medical family histories.

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Mesh:

Year:  2010        PMID: 21169209     DOI: 10.1177/1363459310384493

Source DB:  PubMed          Journal:  Health (London)        ISSN: 1363-4593


  8 in total

1.  What women think: cancer causal attributions in a diverse sample of women.

Authors:  Vivian M Rodríguez; Maria E Gyure; Rosalie Corona; Joann N Bodurtha; Deborah J Bowen; John M Quillin
Journal:  J Psychosoc Oncol       Date:  2015

2.  Searching for the Kinkeepers: Historian Gender, Age, and Type 2 Diabetes Family History.

Authors:  Alicia M Giordimaina; Jane P Sheldon; Lesli A Kiedrowski; Toby Epstein Jayaratne
Journal:  Health Educ Behav       Date:  2015-04-04

3.  The context of collecting family health history: examining definitions of family and family communication about health among African American women.

Authors:  Tess Thompson; Joann Seo; Julia Griffith; Melanie Baxter; Aimee James; Kimberly A Kaphingst
Journal:  J Health Commun       Date:  2015-03-02

4.  Communicating with Daughters About Familial Risk of Breast Cancer: Individual, Family, and Provider Influences on Women's Knowledge of Cancer Risk.

Authors:  Lucy A Peipins; Juan L Rodriguez; Nikki A Hawkins; Ashwini Soman; Mary C White; M Elizabeth Hodgson; Lisa A DeRoo; Dale P Sandler
Journal:  J Womens Health (Larchmt)       Date:  2018-01-29       Impact factor: 2.681

5.  Family communication in a population at risk for hypertrophic cardiomyopathy.

Authors:  Brittany Batte; Jane P Sheldon; Patricia Arscott; Darcy J Huismann; Lisa Salberg; Sharlene M Day; Beverly M Yashar
Journal:  J Genet Couns       Date:  2014-10-12       Impact factor: 2.537

6.  A qualitative evaluation of the psychosocial impact of family history screening in Australian primary care.

Authors:  Gabrielle T Reid; Fiona M Walter; Jon D Emery
Journal:  J Genet Couns       Date:  2014-10-03       Impact factor: 2.537

7.  The Role of Distributed Health Literacy in Asthma Integrated Care: A Public Medical Context from Portugal.

Authors:  Liliana Abreu; João Arriscado Nunes; Peter Taylor; Susana Silva
Journal:  Int J Integr Care       Date:  2018-06-05       Impact factor: 5.120

8.  Automated Clinical Practice Guideline Recommendations for Hereditary Cancer Risk Using Chatbots and Ontologies: System Description.

Authors:  Jordon B Ritchie; Lewis J Frey; Jean-Baptiste Lamy; Cecelia Bellcross; Heath Morrison; Joshua D Schiffman; Brandon M Welch
Journal:  JMIR Cancer       Date:  2022-01-31
  8 in total

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