OBJECTIVE: To obtain information about the life of the families having children with Down Syndrome through an interview with parents. The authors focused on the effect of having a child with Down syndrome on the parents, factors causing problems on the family and the characteristics of a family with children having Down syndrome. METHODS: In the present study, the authors evaluated the social, economic and individual problems of the parents (n = 100) who had a child with DS by an interview consisting of 16 questions about the families' characteristics, their relations with each other and other people and their attitudes towards the child with DS . The control group consisted of 100 subjects having healthy children who were recruited from the outpatient clinics of the same hospital. RESULTS: The authors found that children with DS mostly spend their time with their mothers, and mothers reported higher levels of stress than fathers. The rate of mothers who reported higher possibility to divorce in the future is much higher than fathers (p < 0.05). CONCLUSIONS: High rates of marital and parental problems, particularly perceived by the mothers, observed in this study are the main issues which should be considered during the assessment of those children in order to cope with the problems and improve both patients' and families' life quality.
OBJECTIVE: To obtain information about the life of the families having children with Down Syndrome through an interview with parents. The authors focused on the effect of having a child with Down syndrome on the parents, factors causing problems on the family and the characteristics of a family with children having Down syndrome. METHODS: In the present study, the authors evaluated the social, economic and individual problems of the parents (n = 100) who had a child with DS by an interview consisting of 16 questions about the families' characteristics, their relations with each other and other people and their attitudes towards the child with DS . The control group consisted of 100 subjects having healthy children who were recruited from the outpatient clinics of the same hospital. RESULTS: The authors found that children with DS mostly spend their time with their mothers, and mothers reported higher levels of stress than fathers. The rate of mothers who reported higher possibility to divorce in the future is much higher than fathers (p < 0.05). CONCLUSIONS: High rates of marital and parental problems, particularly perceived by the mothers, observed in this study are the main issues which should be considered during the assessment of those children in order to cope with the problems and improve both patients' and families' life quality.
Authors: Christian Walter; Saskia Sachsenmaier; Markus Wünschel; Martin Teufel; Marco Götze Journal: J Orthop Surg Res Date: 2020-07-17 Impact factor: 2.359
Authors: Marcia Van Riper; George J Knafl; Maria do Céu Barbieri-Figueiredo; Maria Caples; Hyunkyung Choi; Gert de Graaf; Elysângela Dittz Duarte; Junko Honda; Elena Marta; Supapak Phetrasuwan; Sara Alfieri; Margareth Angelo; Wannee Deoisres; Louise Fleming; Aline Soares Dos Santos; Maria João Rocha da Silva; Beth Skelton; Shelley van der Veek; Kathleen A Knafl Journal: J Fam Nurs Date: 2020-12-04 Impact factor: 3.818