Literature DB >> 21163911

Culture change in long-term care: participatory action research and the role of the resident.

Robin Shura1, Rebecca A Siders, Dale Dannefer.   

Abstract

PURPOSE: This study's purpose was to advance the process of culture change within long-term care (LTC) and assisted living settings by using participatory action research (PAR) to promote residents' competence and nourish the culture change process with the active engagement and leadership of residents. DESIGN AND METHODS: Seven unit-specific PAR groups, each consisting of 4-7 residents, 1-2 family members, and 1-3 staff, met 1 hour per week for 4 months in their nursing home or assisted living units to identify areas in need of improvement and to generate ideas for community change. PAR groups included residents with varied levels of physical and cognitive challenges. Residents were defined as visionaries with expertise based on their 24/7 experience in the facility and prior life experiences.
RESULTS: All PAR groups generated novel ideas for creative improvements and reforms in their communities and showed initiative to implement their ideas. Challenges to the process included staff participation and sustainability. IMPLICATIONS: PAR is a viable method to stimulate creative resident-led reform ideas and initiatives in LTC. Residents' expertise has been overlooked within prominent culture change efforts that have developed and facilitated changes from outside-in and top-down. PAR may be incorporated productively within myriad reform efforts to engage residents' competence. PAR has indirect positive quality of life benefits as a forum of meaningful social engagement and age integration that may transform routinized and often ageist modes of relationships within LTC.

Mesh:

Year:  2010        PMID: 21163911      PMCID: PMC3140257          DOI: 10.1093/geront/gnq099

Source DB:  PubMed          Journal:  Gerontologist        ISSN: 0016-9013


  16 in total

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2.  Photovoice: use of a participatory action research method to explore the chronic pain experience in older adults.

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3.  The nursing home culture-change movement: recent past, present, and future directions for research.

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Review 4.  Pain in nursing home residents: management strategies.

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5.  Person-centered care for nursing home residents: the culture-change movement.

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6.  Development and initial testing of a measure of person-directed care.

Authors:  Diana L White; Linda Newton-Curtis; Karen S Lyons
Journal:  Gerontologist       Date:  2008-07

7.  Age integration and the lives of older people.

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Journal:  Gerontologist       Date:  1994-02

8.  Engaging service users in the development of stroke services: an action research study.

Authors:  Stephanie P Jones; Malcolm F Auton; Christopher R Burton; Caroline L Watkins
Journal:  J Clin Nurs       Date:  2008-05       Impact factor: 3.036

9.  Resident outcomes in small-house nursing homes: a longitudinal evaluation of the initial green house program.

Authors:  Rosalie A Kane; Terry Y Lum; Lois J Cutler; Howard B Degenholtz; Tzy-Chyi Yu
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10.  Social policy and everyday life in nursing homes: a critical ethnography.

Authors:  T Diamond
Journal:  Soc Sci Med       Date:  1986       Impact factor: 4.634

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  12 in total

1.  Implementing Culture Change in Nursing Homes: An Adaptive Leadership Framework.

Authors:  Kirsten Corazzini; Jack Twersky; Heidi K White; Gwendolen T Buhr; Eleanor S McConnell; Madeline Weiner; Cathleen S Colón-Emeric
Journal:  Gerontologist       Date:  2014-01-22

2.  Using participatory approaches with older people in a residential home in Guyana: challenges and tensions.

Authors:  Gillian Hewitt; Alizon K Draper; Suraiya Ismail
Journal:  J Cross Cult Gerontol       Date:  2013-03

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4.  Nursing home administrators' perspectives on a study feedback report: a cross sectional survey.

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5.  The Political Economy of Longevity: Developing New Forms of Solidarity for Later Life.

Authors:  Chris Phillipson
Journal:  Sociol Q       Date:  2015-01

6.  Theoretical foundations guiding culture change: The work of the Partnerships in Dementia Care Alliance.

Authors:  Sherry Dupuis; Carrie A McAiney; Darla Fortune; Jenny Ploeg; Lorna de Witt
Journal:  Dementia (London)       Date:  2014-01-13

Review 7.  Methods for Involving Older People in Health Research-A Review of the Literature.

Authors:  Imke Schilling; Ansgar Gerhardus
Journal:  Int J Environ Res Public Health       Date:  2017-11-29       Impact factor: 3.390

8.  Health personnel's experience with resident-centered care in nursing homes in Korea: A qualitative study.

Authors:  HeeKyung Chang
Journal:  Int J Nurs Sci       Date:  2019-03-26

Review 9.  Older care-home residents as collaborators or advisors in research: a systematic review.

Authors:  Tamara Backhouse; Andrea Kenkmann; Kathleen Lane; Bridget Penhale; Fiona Poland; Anne Killett
Journal:  Age Ageing       Date:  2016-01-19       Impact factor: 10.668

10.  Multidisciplinary exhibit design in a Science Centre: a participatory action research approach.

Authors:  Hannah Rudman; Claire Bailey-Ross; Jeremy Kendal; Zarja Mursic; Andy Lloyd; Bethan Ross; Rachel L Kendal
Journal:  Educ Action Res       Date:  2017-08-20
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