Literature DB >> 21148462

Families with children who are technology dependent: normalization and family functioning.

Valerie Boebel Toly1, Carol M Musil, John C Carl.   

Abstract

This cross-sectional study examined family functioning and normalization in 103 mothers of children ≤16 years of age dependent on medical technology (mechanical ventilation, intravenous nutrition/medication, respiratory/nutritional support) following initiation of home care. Differences in outcomes (mother's depressive symptoms, normalization, family functioning), based on the type of technology used, were also examined. Participants were interviewed face-to-face using the Demographic Characteristics Questionnaire, the Functional Status II-Revised Scale, the Center for Epidemiological Studies-Depression Scale, a Normalization Scale subscale, and the Feetham Family Functioning Survey. Thirty-five percent of the variance in family functioning was explained primarily by the mothers' level of depressive symptoms. Several variables were significant predictors of normalization. Analysis of variance revealed no significant difference in outcomes based on the type of technology used. Mothers of technology-dependent children are at high risk for clinical depression that may affect family functioning. This article concludes with clinical practice and policy implications.

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Year:  2010        PMID: 21148462      PMCID: PMC3271785          DOI: 10.1177/0193945910389623

Source DB:  PubMed          Journal:  West J Nurs Res        ISSN: 0193-9459            Impact factor:   1.967


  38 in total

1.  Living in a house of cards: family experiences with long-term childhood technology dependence.

Authors:  M E O'Brien
Journal:  J Pediatr Nurs       Date:  2001-02       Impact factor: 2.145

2.  Children who are medically fragile in North Carolina: using Medicaid data to estimate prevalence and medical care costs in 2004.

Authors:  Paul A Buescher; J Timothy Whitmire; Susan Brunssen; Catherine E Kluttz-Hile
Journal:  Matern Child Health J       Date:  2006-06-03

3.  Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed.

Authors:  Roberta S Rehm; Joan F Bradley
Journal:  Qual Health Res       Date:  2005-07

4.  A power primer.

Authors:  J Cohen
Journal:  Psychol Bull       Date:  1992-07       Impact factor: 17.737

5.  The unknown and the unknowable--managing sustained uncertainty.

Authors:  M H Cohen
Journal:  West J Nurs Res       Date:  1993-02       Impact factor: 1.967

6.  Impact on the family of children who are technology dependent and cared for in the home.

Authors:  J Fleming; M Challela; J Eland; R Hornick; P Johnson; I Martinson; D Nativio; K Nokes; I Riddle; N Steele
Journal:  Pediatr Nurs       Date:  1994 Jul-Aug

7.  Absolute involvement: the experience of mothers of ventilator-dependent children.

Authors:  Sharon Wilson; Janice M. Morse; Janice Penrod
Journal:  Health Soc Care Community       Date:  1998-07

8.  Functional status II(R). A measure of child health status.

Authors:  R E Stein; D J Jessop
Journal:  Med Care       Date:  1990-11       Impact factor: 2.983

9.  "High-tech" home care for children with chronic health conditions: a pilot study.

Authors:  B R Teague; J W Fleming; A Castle; B S Kiernan; M L Lobo; S Riggs; J G Wolfe
Journal:  J Pediatr Nurs       Date:  1993-08       Impact factor: 2.145

10.  Use of a self-report symptom scale to detect depression in a community sample.

Authors:  J K Myers; M M Weissman
Journal:  Am J Psychiatry       Date:  1980-09       Impact factor: 18.112

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  16 in total

1.  A longitudinal study of families with technology-dependent children.

Authors:  Valerie Boebel Toly; Carol M Musil; John C Carl
Journal:  Res Nurs Health       Date:  2011-12-07       Impact factor: 2.228

2.  Quality of life in home-ventilated children and their families.

Authors:  Rafael González; Amaya Bustinza; Sarah N Fernandez; Miriam García; Silvia Rodriguez; Ma Ángeles García-Teresa; Mirella Gaboli; Silvia García; Olaia Sardón; Diego García; Antonio Salcedo; Antonio Rodríguez; Ma Carmen Luna; Arturo Hernández; Catalina González; Alberto Medina; Estela Pérez; Alicia Callejón; Juan D Toledo; Mercedes Herranz; Jesús López-Herce
Journal:  Eur J Pediatr       Date:  2017-08-12       Impact factor: 3.183

3.  Mothers caring for technology-dependent children at home: What is most helpful and least helpful?

Authors:  Valerie Boebel Toly; Julia E Blanchette; Carol M Musil
Journal:  Appl Nurs Res       Date:  2019-02-08       Impact factor: 2.257

4.  Sleep patterns, sleep instability, and health related quality of life in parents of ventilator-assisted children.

Authors:  Lisa J Meltzer; Maria J Sanchez-Ortuno; Jack D Edinger; Kristin T Avis
Journal:  J Clin Sleep Med       Date:  2015-03-15       Impact factor: 4.062

5.  Resourcefulness Intervention Efficacy for Parent Caregivers of Technology-Dependent Children: A Randomized Trial.

Authors:  Valerie Boebel Toly; Jaclene A Zauszniewski; Jiao Yu; Abdus Sattar; Bethany Rusincovitch; Carol M Musil
Journal:  West J Nurs Res       Date:  2021-12-29       Impact factor: 1.774

6.  Families' Priorities Regarding Hospital-to-Home Transitions for Children With Medical Complexity.

Authors:  JoAnna K Leyenaar; Emily R O'Brien; Laurel K Leslie; Peter K Lindenauer; Rita M Mangione-Smith
Journal:  Pediatrics       Date:  2016-12-02       Impact factor: 7.124

7.  Journaling as reinforcement for the resourcefulness training intervention in mothers of technology-dependent children.

Authors:  Valerie Boebel Toly; Julia E Blanchette; Carol M Musil; Jaclene A Zauszniewski
Journal:  Appl Nurs Res       Date:  2016-08-21       Impact factor: 2.257

8.  Factors Related to Depressive Symptoms in Mothers of Technology-Dependent Children.

Authors:  Valerie Boebel Toly; Carol M Musil
Journal:  Issues Ment Health Nurs       Date:  2015-07       Impact factor: 1.835

9.  Family and healthcare professionals' perceptions of a pilot hospice at home programme for children: a qualitative study.

Authors:  Maria Brenner; Michael Connolly; Des Cawley; Frances Howlin; Jay Berry; Claire Quinn
Journal:  BMC Palliat Care       Date:  2016-10-28       Impact factor: 3.234

10.  Parents' perspectives of the transition to home when a child has complex technological health care needs.

Authors:  Maria Brenner; Philip J Larkin; Carol Hilliard; Des Cawley; Frances Howlin; Michael Connolly
Journal:  Int J Integr Care       Date:  2015-09-29       Impact factor: 5.120

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