Literature DB >> 21135061

Experiences of adjusting to early stage Multiple Sclerosis.

Laura Dennison1, Lucy Yardley, Angela Devereux, Rona Moss-Morris.   

Abstract

Multiple Sclerosis (MS) is a progressive, unpredictable neurological disease. Little research has examined adjustment to living with MS, especially within early disease stages. We interviewed 30 people with early stage MS and analysed transcripts using thematic analysis. Early stage MS was typically considered difficult but manageable and was dealt with through positivity and practical strategies to preserve normal life. However, adjustment seemed precariously contingent on reasonable current and future health status. Participants described disinclination towards involvement in the stigmatized world of MS. Findings have implications for sensitive services for people with MS and question acceptance as a marker of appropriate adaptation.

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Year:  2010        PMID: 21135061     DOI: 10.1177/1359105310384299

Source DB:  PubMed          Journal:  J Health Psychol        ISSN: 1359-1053


  14 in total

1.  Intolerance of Uncertainty: Shaping an Agenda for Research on Coping with Multiple Sclerosis.

Authors:  Kevin N Alschuler; Meghan L Beier
Journal:  Int J MS Care       Date:  2015 Jul-Aug

2.  The perceived impact of multiple sclerosis and self-management: The mediating role of coping strategies.

Authors:  Maciej Wilski; Waldemar Brola; Magdalena Łuniewska; Maciej Tomczak
Journal:  PLoS One       Date:  2021-03-11       Impact factor: 3.240

3.  "I knew what was going to happen if I did nothing and so I was going to do something": faith, hope, and trust in the decisions of Canadians with multiple sclerosis to seek unproven interventions abroad.

Authors:  Jeremy Snyder; Krystyna Adams; Valorie A Crooks; David Whitehurst; Jennifer Vallee
Journal:  BMC Health Serv Res       Date:  2014-09-30       Impact factor: 2.655

4.  How Do People with Multiple Sclerosis Experience Prognostic Uncertainty and Prognosis Communication? A Qualitative Study.

Authors:  Laura Dennison; Ellen McCloy Smith; Katherine Bradbury; Ian Galea
Journal:  PLoS One       Date:  2016-07-19       Impact factor: 3.240

5.  A qualitative study assessing patient perspectives in the process of decision-making on disease modifying therapies (DMT's) in multiple sclerosis (MS).

Authors:  Archibald de Ceuninck van Capelle; Hanneke van der Meide; Frans J H Vosman; Leo H Visser
Journal:  PLoS One       Date:  2017-08-24       Impact factor: 3.240

6.  Disease Profiling for Computerized Peer Support of Ménière's Disease.

Authors:  Jyrki Rasku; Ilmari Pyykkö; Hilla Levo; Erna Kentala; Vinaya Manchaiah
Journal:  JMIR Rehabil Assist Technol       Date:  2015-09-03

7.  Multiple challenges for people after transitioning to secondary progressive multiple sclerosis: a qualitative study.

Authors:  Angeliki Bogosian; Myfanwy Morgan; Rona Moss-Morris
Journal:  BMJ Open       Date:  2019-03-08       Impact factor: 2.692

8.  Concept analysis of coping with multiple sclerosis.

Authors:  Ali Dehghani; Abdolkhalegh Keshavarzi; Mohsen Faseleh Jahromi; Sara Shahsavari Isfahani; Soheila Keshavarzi
Journal:  Int J Nurs Sci       Date:  2018-04-19

9.  Efficacy and safety of delayed-release dimethyl fumarate in patients newly diagnosed with relapsing-remitting multiple sclerosis (RRMS).

Authors:  Ralf Gold; Gavin Giovannoni; J Theodore Phillips; Robert J Fox; Annie Zhang; Leslie Meltzer; Nuwan C Kurukulasuriya
Journal:  Mult Scler       Date:  2014-07-02       Impact factor: 6.312

10.  Sustained Effect of Delayed-Release Dimethyl Fumarate in Newly Diagnosed Patients with Relapsing-Remitting Multiple Sclerosis: 6-Year Interim Results From an Extension of the DEFINE and CONFIRM Studies.

Authors:  Ralf Gold; Gavin Giovannoni; J Theodore Phillips; Robert J Fox; Annie Zhang; Jing L Marantz
Journal:  Neurol Ther       Date:  2016-03-01
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