OBJECTIVE: To asses self-reported quality of life (QoL) and perception of impact of illness on siblings of children with cystic fibrosis (CF). METHODS: The Child Health Questionnaire was used to assess QoL. The Sibling Perception Questionnaire was used to assess impact of illness. RESULTS: Siblings of children with CF (n= 39) rated their QoL higher than siblings of healthy children on most QoL domains (e.g. Physical Functioning, Behavior, Mental Health). Siblings older than the child with CF reported a higher impact of CF than younger siblings. Perceived impact of illness was higher when the child with CF had been hospitalized or was intermittent or chronically infected with Pseudomonas aeruginosa. CONCLUSIONS: Siblings of children with CF reported a good QoL. QoL and impact of illness were related to indices of CF severity. Insight into sibling-issues helps CF teams to provide family-oriented care.
OBJECTIVE: To asses self-reported quality of life (QoL) and perception of impact of illness on siblings of children with cystic fibrosis (CF). METHODS: The Child Health Questionnaire was used to assess QoL. The Sibling Perception Questionnaire was used to assess impact of illness. RESULTS: Siblings of children with CF (n= 39) rated their QoL higher than siblings of healthy children on most QoL domains (e.g. Physical Functioning, Behavior, Mental Health). Siblings older than the child with CF reported a higher impact of CF than younger siblings. Perceived impact of illness was higher when the child with CF had been hospitalized or was intermittent or chronically infected with Pseudomonas aeruginosa. CONCLUSIONS: Siblings of children with CF reported a good QoL. QoL and impact of illness were related to indices of CF severity. Insight into sibling-issues helps CF teams to provide family-oriented care.
Authors: Bruno Neuner; Sylvia von Mackensen; Susanne Holzhauer; Stephanie Funk; Robert Klamroth; Karin Kurnik; Anne Krümpel; Susan Halimeh; Sarah Reinke; Michael Frühwald; Ulrike Nowak-Göttl Journal: Biomed Res Int Date: 2016-05-15 Impact factor: 3.411