Literature DB >> 21056145

Overcoming challenges: life with an ostomy.

Sarah Popek1, Marcia Grant, Robin Gemmill, Christopher S Wendel, M Jane Mohler, Susan M Rawl, Carol M Baldwin, Clifford Y Ko, C Max Schmidt, Robert S Krouse.   

Abstract

BACKGROUND: Studies have demonstrated decreased health-related quality of life in patients with stomas.
METHODS: Using US Department of Veterans Affairs electronic medical records, veterans with stomas were surveyed using the City of Hope Quality of Life-Ostomy questionnaire. Focus groups were conducted segregated by type of stoma (ileostomy vs colostomy) and quality-of-life score (high vs low). Qualitative analysis was performed on the basis of the City of Hope Quality of Life for Ostomates format of health-related quality of life (physical, psychological, social, and spiritual). The findings of the colostomy focus groups are reported.
RESULTS: Two new domains emerged: colostomy specific and health care specific. The most common domains discussed were colostomy specific, psychological, and social. The most frequently discussed colostomy-specific theme was effective and ineffective solutions to colostomy care. Family and spousal relationships were the main theme from the psychological category. The predominant social issue was sexual relationships.
CONCLUSIONS: Awareness of patients' social, psychological, and medical status allows surgeons to identify those likely to have problems and devote resources to those veterans. Published by Elsevier Inc.

Entities:  

Mesh:

Year:  2010        PMID: 21056145     DOI: 10.1016/j.amjsurg.2010.07.009

Source DB:  PubMed          Journal:  Am J Surg        ISSN: 0002-9610            Impact factor:   2.565


  17 in total

1.  Effect of gender on psychosocial adjustment of colorectal cancer survivors with ostomy.

Authors:  Sital Gautam; Anju Poudel
Journal:  J Gastrointest Oncol       Date:  2016-12

2.  From diagnosis through survivorship: health-care experiences of colorectal cancer survivors with ostomies.

Authors:  Virginia Sun; Marcia Grant; Carmit K McMullen; Andrea Altschuler; M Jane Mohler; Mark C Hornbrook; Lisa J Herrinton; Robert S Krouse
Journal:  Support Care Cancer       Date:  2014-01-19       Impact factor: 3.603

3.  Experiences and coping with the altered body image in digestive stoma patients.

Authors:  César Hueso-Montoro; Candela Bonill-de-Las-Nieves; Miriam Celdrán-Mañas; Sandra Milena Hernández-Zambrano; Manuel Amezcua-Martínez; José Miguel Morales-Asencio
Journal:  Rev Lat Am Enfermagem       Date:  2016-12-08

4.  Rectal Cancer Survivors' Participation in Productive Activities.

Authors:  Mark C Hornbrook; Marcia Grant; Christopher Wendel; Joanna E Bulkley; Carmit K Mcmullen; Andrea Altschuler; Larissa Kf Temple; Lisa J Herrinton; Robert S Krouse
Journal:  Perm J       Date:  2018

Review 5.  Spouses of patients with a stoma lack information and support and are restricted in their social and sexual life: a systematic review.

Authors:  Anne Kjaergaard Danielsen; Jakob Burcharth; Jacob Rosenberg
Journal:  Int J Colorectal Dis       Date:  2013-07-31       Impact factor: 2.571

6.  Changes in body mass index and stoma related problems in the elderly.

Authors:  Raymond Skeps; Carmit K McMullen; Christopher S Wendel; Joanna Bulkley; Marcia Grant; Jane Mohler; Mark C Hornbrook; Robert S Krouse; Lisa J Herrinton
Journal:  J Geriatr Oncol       Date:  2012-10-27       Impact factor: 3.599

7.  Surviving colorectal cancer: long-term, persistent ostomy-specific concerns and adaptations.

Authors:  Virginia Sun; Marcia Grant; Carmit K McMullen; Andrea Altschuler; M Jane Mohler; Mark C Hornbrook; Lisa J Herrinton; Carol M Baldwin; Robert S Krouse
Journal:  J Wound Ostomy Continence Nurs       Date:  2013 Jan-Feb       Impact factor: 1.741

8.  Quality of life and need for care in patients with an ostomy: a survey of 2647 patients of the Berlin OStomy-Study (BOSS).

Authors:  Chris Braumann; Verena Müller; Moritz Knies; Birgit Aufmesser; Wolfgang Schwenk; Gerold Koplin
Journal:  Langenbecks Arch Surg       Date:  2016-09-22       Impact factor: 3.445

Review 9.  Conversations for providers caring for patients with rectal cancer: Comparison of long-term patient-centered outcomes for patients with low rectal cancer facing ostomy or sphincter-sparing surgery.

Authors:  Lisa J Herrinton; Andrea Altschuler; Carmit K McMullen; Joanna E Bulkley; Mark C Hornbrook; Virginia Sun; Christopher S Wendel; Marcia Grant; Carol M Baldwin; Wendy Demark-Wahnefried; Larissa K F Temple; Robert S Krouse
Journal:  CA Cancer J Clin       Date:  2016-03-21       Impact factor: 508.702

10.  Development of a chronic care ostomy self-management program.

Authors:  Marcia Grant; Ruth McCorkle; Mark C Hornbrook; Christopher S Wendel; Robert Krouse
Journal:  J Cancer Educ       Date:  2013-03       Impact factor: 2.037

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