Literature DB >> 21047039

Letters from relatives: a source of information providing rich insight into the experience of the family in palliative care.

Carlos Centeno1, María Arantzamendi, Belén Rodríguez, Miguel Tavares.   

Abstract

Studies on the effectiveness and efficiency of palliative care (PC) services that use a methodology similar to that used by studies in other medical specialties face serious limitations, since the goals of PC are substantially different. Qualitative research methods can make an important contribution to our understanding of the features of palliative care (PC) that are most relevant to patients and their relatives. The goal of this study was to understand the reasons behind the gratitude shown in letters from bereaved relatives sent to two PC units, one in Spain and one in Portugal. A thematic analysis of the content of the letters was independently carried out by three researchers, who later collaborated to write up the results. Relatives appeared grateful primarily for the humane attitude, professional treatment, and emotional support that their loved ones received from the PC team; they thanked the team for creating a special atmosphere and offering holistic care, and they talked about the contrast between PC and other forms of care. The unsolicited gratitude expressed in their letters constitutes a valid and particularly rich source of information about the contribution that a PC team can make.

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Year:  2010        PMID: 21047039

Source DB:  PubMed          Journal:  J Palliat Care        ISSN: 0825-8597            Impact factor:   2.250


  7 in total

1.  A Canadian experience of integrating complementary therapy in a hospital palliative care unit.

Authors:  Liora Berger; Marianne Tavares; Brian Berger
Journal:  J Palliat Med       Date:  2013-09-10       Impact factor: 2.947

2.  Positive emotion communication: Fostering well-being at end of life.

Authors:  Alexandra L Terrill; Lee Ellington; Kevin K John; Seth Latimer; Jiayun Xu; Maija Reblin; Margaret F Clayton
Journal:  Patient Educ Couns       Date:  2017-11-28

3.  What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care.

Authors:  María Aparicio; Carlos Centeno; José Miguel Carrasco; Antonio Barbosa; María Arantzamendi
Journal:  BMC Palliat Care       Date:  2017-09-06       Impact factor: 3.234

4.  Palliative care in its own discourse: a focused ethnography of professional messaging in palliative care.

Authors:  Carla Reigada; Maria Arantzamendi; Carlos Centeno
Journal:  BMC Palliat Care       Date:  2020-06-22       Impact factor: 3.234

5.  Palliative Professionals' Experiences of Receiving Gratitude: A Transformative and Protective Resource.

Authors:  Maria Aparicio; Carlos Centeno; Carole A Robinson; María Arantzamendi
Journal:  Qual Health Res       Date:  2022-05-15

6.  Palliative Care Professionals' Message to Others: An Ethnographic Approach.

Authors:  Carla Reigada; Carlos Centeno; Edna Gonçalves; Maria Arantzamendi
Journal:  Int J Environ Res Public Health       Date:  2021-05-17       Impact factor: 3.390

Review 7.  Gratitude in Health Care: A Meta-narrative Review.

Authors:  Giskin Day; Glenn Robert; Anne Marie Rafferty
Journal:  Qual Health Res       Date:  2020-09-13
  7 in total

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