PURPOSE: We conducted a study to measure the associations of socio-demographic factors with quality of life outcomes among adults with congenital heart disease (CHD). METHODS: Results are drawn from a questionnaire-based survey in 676 adults with CHD and compared to age and sex-matched controls of a representative national survey. Subjective outcomes were measured as health-related quality of life (hrQoL), health and life satisfaction. The associations of the subjective well-being with the degree of severity of the underlying heart defect and socio-demographic factors such as educational and employment status were quantified in multiple linear regression models. RESULTS: A significant correlation of the degree of severity of the heart defect was limited to the physical scale of the hrQoL, whereas for the mental scale of the hrQoL and the satisfaction scales, socio-demographic factors showed a stronger association. Furthermore, the associations of socio-demographic factors and subjective well-being were stronger in the patient group than in the control group. CONCLUSIONS: Socio-demographic factors can be significantly associated with the subjective well-being of adults with CHD. In order to assist the surgical successes of the past decades, which have ensured the survival of most of these patients into adulthood, increased attention should be paid to these domains in the care of adults with CHD.
PURPOSE: We conducted a study to measure the associations of socio-demographic factors with quality of life outcomes among adults with congenital heart disease (CHD). METHODS: Results are drawn from a questionnaire-based survey in 676 adults with CHD and compared to age and sex-matched controls of a representative national survey. Subjective outcomes were measured as health-related quality of life (hrQoL), health and life satisfaction. The associations of the subjective well-being with the degree of severity of the underlying heart defect and socio-demographic factors such as educational and employment status were quantified in multiple linear regression models. RESULTS: A significant correlation of the degree of severity of the heart defect was limited to the physical scale of the hrQoL, whereas for the mental scale of the hrQoL and the satisfaction scales, socio-demographic factors showed a stronger association. Furthermore, the associations of socio-demographic factors and subjective well-being were stronger in the patient group than in the control group. CONCLUSIONS: Socio-demographic factors can be significantly associated with the subjective well-being of adults with CHD. In order to assist the surgical successes of the past decades, which have ensured the survival of most of these patients into adulthood, increased attention should be paid to these domains in the care of adults with CHD.
Authors: John L Jefferies; Jacqueline A Noonan; Bradley B Keller; John F Wilson; Charles Griffith Journal: Am J Cardiol Date: 2004-07-15 Impact factor: 2.778
Authors: A G E M de Boer; J J B van Lanschot; P F M Stalmeier; J W van Sandick; J B F Hulscher; J C J M de Haes; M A G Sprangers Journal: Qual Life Res Date: 2004-03 Impact factor: 4.147
Authors: M Kamphuis; J Ottenkamp; H W Vliegen; T Vogels; K H Zwinderman; R P Kamphuis; S P Verloove-Vanhorick Journal: Heart Date: 2002-04 Impact factor: 5.994
Authors: Ashley E Neal; Christian Stopp; David Wypij; David C Bellinger; Carolyn Dunbar-Masterson; David R DeMaso; Jane W Newburger Journal: J Pediatr Date: 2014-10-28 Impact factor: 4.406
Authors: Maayke A Sluman; Silke Apers; Judith K Sluiter; Karen Nieuwenhuijsen; Philip Moons; Koen Luyckx; Adrienne H Kovacs; Corina Thomet; Werner Budts; Junko Enomoto; Hsiao-Ling Yang; Jamie L Jackson; Paul Khairy; Stephen C Cook; Raghavan Subramanyan; Luis Alday; Katrine Eriksen; Mikael Dellborg; Malin Berghammer; Eva Mattsson; Andrew S Mackie; Samuel Menahem; Maryanne Caruana; Kathy Gosney; Alexandra Soufi; Susan M Fernandes; Kamila S White; Edward Callus; Shelby Kutty; Berto J Bouma; Barbara J M Mulder Journal: Congenit Heart Dis Date: 2019-02-04 Impact factor: 2.007
Authors: Caroline Sophie Andonian; Sebastian Freilinger; Stephan Achenbach; Peter Ewert; Ulrike Gundlach; Jürgen Hoerer; Harald Kaemmerer; Lars Pieper; Michael Weyand; Rhoia Clara Neidenbach; Jürgen Beckmann Journal: BMJ Open Date: 2021-06-22 Impact factor: 2.692
Authors: Klaus Kaier; Anja Gutmann; Hardy Baumbach; Constantin von Zur Mühlen; Philip Hehn; Werner Vach; Friedhelm Beyersdorf; Manfred Zehender; Christoph Bode; Jochen Reinöhl Journal: Health Qual Life Outcomes Date: 2016-07-26 Impact factor: 3.186