Literature DB >> 21036506

Infertility; isolation and the Internet: a qualitative interview study.

Lisa Hinton1, Jennifer J Kurinczuk, Sue Ziebland.   

Abstract

OBJECTIVES: This study explores the roles and meanings of the Internet, which is commonly used in this age group, as a source of support for people with fertility problems.
METHODS: A qualitative interview study with 27 women and 11 men who had been, or were going, through treatment for infertility. A maximum variation sample was sought. Narrative interviews were conducted and transcribed for thematic analysis.
RESULTS: Women and men with fertility problems often feel isolated. The Internet offers anonymity, emotional support, normalisation and reassurance. It also offers the prospect of niche support from others going through treatments at the same time and in similar circumstances. Online infertility networks can play a valuable role in helping people deal with the emotional stresses and isolation they feel during and after treatment, but has the potential to reinforce isolation.
CONCLUSIONS: The Internet is changing people's experience of infertility, giving people access to other's experiences. Internet communication is highly valued by couples, especially those isolated in their real world relationships. PRACTICE IMPLICATIONS: Clinicians can help by referring couples to websites while being aware that increasingly 'niche' support could compound isolation.
Copyright © 2010 Elsevier Ireland Ltd. All rights reserved.

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Year:  2010        PMID: 21036506     DOI: 10.1016/j.pec.2010.09.023

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  18 in total

1.  Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1: a Pilot Study.

Authors:  S Martin; M C Roderick; R Lockridge; M A Toledo-Tamula; A Baldwin; P Knight; P Wolters
Journal:  J Genet Couns       Date:  2016-11-07       Impact factor: 2.537

2.  Losses and Gains of Psychosocial Resources: Effects on Stress Among Women Undergoing Infertility Treatments and Participating in Social Network Systems.

Authors:  Leigh Chazan; Talma Kushnir
Journal:  Psychiatr Q       Date:  2019-12

3.  Reassured or fobbed off? Perspectives on infertility consultations in primary care: a qualitative study.

Authors:  Lisa Hinton; Jenny J Kurinczuk; Sue Ziebland
Journal:  Br J Gen Pract       Date:  2012-06       Impact factor: 5.386

4.  An Internet support group for parents of children with neurofibromatosis type 1: a qualitative analysis.

Authors:  Staci Martin; Kari L Struemph; Alyssa Poblete; Mary Anne Toledo-Tamula; Robin Lockridge; Marie Claire Roderick; Pamela Wolters
Journal:  J Community Genet       Date:  2018-03-02

5.  Communication in reproductive health: intimate topics and challenging conversations.

Authors:  Christine Dehlendorf; Ward Rinehart
Journal:  Patient Educ Couns       Date:  2010-11-26

6.  Levels and associations among self-esteem, fertility distress, coping, and reaction to potentially being a genetic carrier in women with diminished ovarian reserve.

Authors:  Ceylan Cizmeli; Marci Lobel; Jason Franasiak; Lisa M Pastore
Journal:  Fertil Steril       Date:  2013-03-15       Impact factor: 7.329

7.  'I felt less alone knowing I could contribute to the forum': psychological distress and use of an online infertility peer support forum.

Authors:  Siobhan Bernadette Laura O'Connell; Eden Noah Gelgoot; Paul Henry Grunberg; Joy Schinazi; Deborah Da Costa; Cindy-Lee Dennis; Zeev Rosberger; Phyllis Zelkowitz
Journal:  Health Psychol Behav Med       Date:  2021-02-11

Review 8.  Health and illness in a connected world: how might sharing experiences on the internet affect people's health?

Authors:  Sue Ziebland; Sally Wyke
Journal:  Milbank Q       Date:  2012-06       Impact factor: 4.911

9.  Life on pause: An analysis of UK fertility patients' coping mechanisms after the cancellation of fertility treatment due to COVID-19.

Authors:  Anna Tippett
Journal:  J Health Psychol       Date:  2021-03-08

10.  "So Much of This Story Could Be Me": Men's Use of Support in Online Infertility Discussion Boards.

Authors:  Jeremie Richard; Icoquih Badillo-Amberg; Phyllis Zelkowitz
Journal:  Am J Mens Health       Date:  2016-10-04
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