Literature DB >> 20980698

Moving to place: childhood cancer treatment decision making in single-parent and repartnered family structures.

Katherine Patterson Kelly1, Lawrence Ganong.   

Abstract

Few researchers have studied how parents from diverse family structures cope with childhood chronic illness. We designed this study to discern the childhood cancer treatment decision-making (TDM) process in these families. Using grounded theory, we interviewed 15 custodial parents, nonresidential parents, and stepparents who had previously made a major treatment decision for their children with cancer. "Moving to place" was the central psychosocial process by which parents negotiated involvement in TDM. Parents moved toward or were moved away from involvement based on parent position in the family (custodial, nonresidential, and stepparent), prediagnosis family dynamics, and time since diagnosis. Parents used the actions of stepping up, stepping back, being pushed, and stepping away to respond to the need for TDM. Parents faced additional stressors because of their family situations, which affected the TDM process. Findings from this study provide important insight into diverse families and their unique parental TDM experiences.

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Mesh:

Year:  2010        PMID: 20980698     DOI: 10.1177/1049732310385823

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  4 in total

1.  Racial and Ethnic Diversity in Grounded Theory Research.

Authors:  Claire Burke Draucker; Halima Al-Khattab; Dana D Hines; Jill Mazurczyk; Anne C Russell; Pam Shockey Stephenson; Shannon Draucker
Journal:  Qual Rep       Date:  2014-04-28

2.  Commentary: Writing and Evaluating Qualitative Research Reports.

Authors:  Yelena P Wu; Deborah Thompson; Karen J Aroian; Elizabeth L McQuaid; Janet A Deatrick
Journal:  J Pediatr Psychol       Date:  2016-04-26

3.  Understanding the health impact of caregiving: a qualitative study of immigrant parents and single parents of children with cancer.

Authors:  Anne F Klassen; Sonia Gulati; Leeat Granek; Zahava R S Rosenberg-Yunger; Lisa Watt; Lillian Sung; Robert Klaassen; David Dix; Nicola T Shaw
Journal:  Qual Life Res       Date:  2011-11-30       Impact factor: 4.147

4.  Cancer-Related Decision-Making Among Adolescents, Young Adults, Caregivers, and Oncology Providers.

Authors:  Katie Darabos; Allison J Berger; Lamia P Barakat; Lisa A Schwartz
Journal:  Qual Health Res       Date:  2021-08-12
  4 in total

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