Literature DB >> 20925707

Dementia, dignity and quality of life: nursing practice and its dilemmas.

Jill Manthorpe1, Steve Iliffe, Kritika Samsi, Laura Cole, Claire Goodman, Vari Drennan, James Warner.   

Abstract

AIMS: The need for healthcare practitioners to respect the dignity of older people is widely recognised in England, where it has been given attention by politicians, professionals and health service regulators. This article aims to provide examples of how such ambitions may be used in practice development.
METHODS: This article reports the use of five vignettes discussed by dementia care practitioners that explored the areas of dementia diagnosis, lying, incontinence, behavioural and psychological distress, and end of life care.
FINDINGS: Each vignette promoted discussion of differences of perspectives about the ways to enhance the dignity of people with dementia in hospital, care home and community settings. The discussion confirmed that while dignity may be one quality indicator of good care potentially enhancing quality of life, it is not always straightforward. It may be more easily conceptualised when talking of physical care and treatment than other areas.
CONCLUSION: The opportunity to debate the subject and to discuss practice examples revealed differences of opinion and moral perspectives between practitioners about the use and relevance of the term dignity. These need to be acknowledged in any debates about objective and subjective definitions of quality of life.
© 2010 Blackwell Publishing Ltd.

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Year:  2010        PMID: 20925707     DOI: 10.1111/j.1748-3743.2010.00231.x

Source DB:  PubMed          Journal:  Int J Older People Nurs        ISSN: 1748-3735            Impact factor:   2.115


  10 in total

1.  Developing the New Interventions for independence in Dementia Study (NIDUS) theoretical model for supporting people to live well with dementia at home for longer: a systematic review of theoretical models and Randomised Controlled Trial evidence.

Authors:  Kathryn Lord; Jules Beresford-Dent; Penny Rapaport; Alex Burton; Monica Leverton; Kate Walters; Iain Lang; Murna Downs; Jill Manthorpe; Sue Boex; Joy Jackson; Margaret Ogden; Claudia Cooper
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2019-11-02       Impact factor: 4.328

Review 2.  Identifying the components of clinical vignettes describing Alzheimer's disease or other dementias: a scoping review.

Authors:  Harkanwal Randhawa; Aalim Jiwa; Mark Oremus
Journal:  BMC Med Inform Decis Mak       Date:  2015-07-15       Impact factor: 2.796

3.  Improving the experience of dementia and enhancing active life--living well with dementia: study protocol for the IDEAL study.

Authors:  Linda Clare; Sharon M Nelis; Catherine Quinn; Anthony Martyr; Catherine Henderson; John V Hindle; Ian R Jones; Roy W Jones; Martin Knapp; Michael D Kopelman; Robin G Morris; James A Pickett; Jennifer M Rusted; Nada M Savitch; Jeanette M Thom; Christina R Victor
Journal:  Health Qual Life Outcomes       Date:  2014-11-30       Impact factor: 3.186

Review 4.  Patient reported outcome measures for measuring dignity in palliative and end of life care: a scoping review.

Authors:  Bridget Johnston; Kate Flemming; Melanie Jay Narayanasamy; Carolyn Coole; Beth Hardy
Journal:  BMC Health Serv Res       Date:  2017-08-22       Impact factor: 2.655

5.  A concept analysis of dignity-protective continence care for care dependent older people in long-term care settings.

Authors:  Joan Ostaszkiewicz; Virginia Dickson-Swift; Alison Hutchinson; Adrian Wagg
Journal:  BMC Geriatr       Date:  2020-07-29       Impact factor: 3.921

6.  "I just keep thinking that I don't want to rely on people." a qualitative study of how people living with dementia achieve and maintain independence at home: stakeholder perspectives.

Authors:  Penny Rapaport; Alexandra Burton; Monica Leverton; Ruminda Herat-Gunaratne; Jules Beresford-Dent; Kathryn Lord; Murna Downs; Sue Boex; Rossana Horsley; Clarissa Giebel; Claudia Cooper
Journal:  BMC Geriatr       Date:  2020-01-03       Impact factor: 3.921

7.  Behaviour-directed interventions for problematic person transfer situations in two dementia care dyads: a single-case design study.

Authors:  Hanna Lagerlund; Charlotta Thunborg; Maria Sandborgh
Journal:  BMC Geriatr       Date:  2022-03-29       Impact factor: 3.921

8.  Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders.

Authors:  Anna E Bone; Myfanwy Morgan; Matthew Maddocks; Katherine E Sleeman; Juliet Wright; Shamim Taherzadeh; Clare Ellis-Smith; Irene J Higginson; Catherine J Evans
Journal:  Age Ageing       Date:  2016-09-01       Impact factor: 10.668

9.  How can a measure improve assessment and management of symptoms and concerns for people with dementia in care homes? A mixed-methods feasibility and process evaluation of IPOS-Dem.

Authors:  Clare Ellis-Smith; Irene J Higginson; Barbara A Daveson; Lesley A Henson; Catherine J Evans
Journal:  PLoS One       Date:  2018-07-11       Impact factor: 3.240

Review 10.  Dignifying and undignifying aspects of care for people with dementia: a narrative review.

Authors:  Wendy van der Geugten; Anne Goossensen
Journal:  Scand J Caring Sci       Date:  2019-11-21
  10 in total

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