Literature DB >> 20874057

Using Talking Mats to support communication in persons with Huntington's disease.

Ulrika Ferm1, Anna Sahlin, Linda Sundin, Lena Hartelius.   

Abstract

BACKGROUND: Many individuals with Huntington's disease experience reduced functioning in cognition, language and communication. Talking Mats is a visually based low technological augmentative communication framework that supports communication in people with different cognitive and communicative disabilities. AIMS: To evaluate Talking Mats as a communication tool for people in the later stages of Huntington's disease. METHODS & PROCEDURES: Five individuals with Huntington's disease participated in the study. Three conditions were compared: unstructured communication, verbally structured communication, and communication using Talking Mats. The conversations were videotaped and analysed quantitatively and qualitatively. OUTCOMES &
RESULTS: Talking Mats increased communicative effectiveness for all participants. Verbally structured conversation resulted in higher effectiveness than the unstructured counterpart and effectiveness differed depending on the type of conversational topic. CONCLUSIONS & IMPLICATIONS: Talking Mats could be a valuable resource for people with Huntington's disease and their conversation partners. It could be used for social purposes, for understanding a person's opinions and for making decisions. Additional research is necessary in order to generalize the results to the population of individuals with Huntington's disease and to understand better the mechanisms behind the positive effects observed.

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Year:  2010        PMID: 20874057     DOI: 10.3109/13682820903222809

Source DB:  PubMed          Journal:  Int J Lang Commun Disord        ISSN: 1368-2822            Impact factor:   3.020


  9 in total

Review 1.  Cognitive impairment in Huntington disease: diagnosis and treatment.

Authors:  Jane S Paulsen
Journal:  Curr Neurol Neurosci Rep       Date:  2011-10       Impact factor: 5.081

2.  Assessing Children's Anxiety Using the Modified Short State-Trait Anxiety Inventory and Talking Mats: A Pilot Study.

Authors:  Stefan Nilsson; Margret Buchholz; Gunilla Thunberg
Journal:  Nurs Res Pract       Date:  2012-09-09

3.  Impact of Huntington's across the entire disease spectrum: the phases and stages of disease from the patient perspective.

Authors:  A K Ho; M B Hocaoglu
Journal:  Clin Genet       Date:  2011-08-04       Impact factor: 4.438

4.  Shared decision-making for people living with dementia in extended care settings: a systematic review.

Authors:  Rachel Louise Daly; Frances Bunn; Claire Goodman
Journal:  BMJ Open       Date:  2018-06-09       Impact factor: 2.692

5.  International Guidelines for the Treatment of Huntington's Disease.

Authors:  Anne-Catherine Bachoud-Lévi; Joaquim Ferreira; Renaud Massart; Katia Youssov; Anne Rosser; Monica Busse; David Craufurd; Ralf Reilmann; Giuseppe De Michele; Daniela Rae; Ferdinando Squitieri; Klaus Seppi; Charles Perrine; Clarisse Scherer-Gagou; Olivier Audrey; Christophe Verny; Jean-Marc Burgunder
Journal:  Front Neurol       Date:  2019-07-03       Impact factor: 4.086

6.  Using a Clinical Formulation to Understand Psychological Distress in People Affected by Huntington's Disease: A Descriptive, Evidence-Based Model.

Authors:  Maria Dale; Ashleigh Wood; Nicolò Zarotti; Fiona Eccles; Sarah Gunn; Reza Kiani; Amanda Mobley; Noelle Robertson; Jane Simpson
Journal:  J Pers Med       Date:  2022-07-27

7.  Unmet needs for healthcare and social support services in patients with Huntington's disease: a cross-sectional population-based study.

Authors:  Marleen R van Walsem; Emilie I Howe; Kristin Iversen; Jan C Frich; Nada Andelic
Journal:  Orphanet J Rare Dis       Date:  2015-09-28       Impact factor: 4.123

8.  Assistive Technology for Cognition and Health-related Quality of Life in Huntington's Disease.

Authors:  Marleen R van Walsem; Emilie I Howe; Jan C Frich; Nada Andelic
Journal:  J Huntingtons Dis       Date:  2016-10-01

9.  Canadian Occupational Performance Measure Supported by Talking Mats: An Evaluation of the Clinical Utility.

Authors:  Vita Hagelskjær; Mette Krohn; Pia Susanne Christensen; Jeanette Reffstrup Christensen
Journal:  Occup Ther Int       Date:  2019-01-22       Impact factor: 1.448

  9 in total

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