Literature DB >> 20853170

"When patients and families feel abandoned".

Daniel E Epner1, Vinod Ravi, Walter F Baile.   

Abstract

PURPOSE: Patients with serious illness derive a sense of security by forming strong, healing relationships with their providers. These bonds are particularly strong in life-threatening illnesses, such as cancer, which carry the stigma of death and suffering. These strong relationships create expectations in patients that are not necessarily shared by their clinicians. Providers often focus on treating disease and emphasize technically excellent, "evidence-based" practice while failing to fully appreciate the power of the patient-provider relationship. In contrast, vulnerable patients expect much more than technical competence, including open and clear communication, security, continuity, and access. Patients are often left feeling abandoned when their providers do not meet their expectations, even when their care is technically sound. METHODS/
RESULTS: In this paper, we describe scenarios that can lead to feelings of abandonment and discuss strategies to avoid and respond to them.
CONCLUSIONS: These strategies can help us maintain healing relationships with our patients by maintaining their trust, confidence, and satisfaction. Cultivating relational aspects of medical practice requires an interchange and takes time. Experienced doctors know this and continue to do so because being present and staying with the patient during difficult times is a pillar of moral and ethical training and a fundamental attribute of a good physician.

Entities:  

Mesh:

Year:  2010        PMID: 20853170     DOI: 10.1007/s00520-010-1007-6

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  14 in total

1.  "I wish things were different": expressing wishes in response to loss, futility, and unrealistic hopes.

Authors:  T E Quill; R M Arnold; F Platt
Journal:  Ann Intern Med       Date:  2001-10-02       Impact factor: 25.391

2.  The physician: a secure base.

Authors:  Philip Gerretsen; Jeff Myers
Journal:  J Clin Oncol       Date:  2008-10-14       Impact factor: 44.544

Review 3.  End of life decision-making for cancer patients.

Authors:  Susan Mockus Parks; Laraine Winter
Journal:  Prim Care       Date:  2009-12       Impact factor: 2.907

4.  First, do not abandon.

Authors:  Vyjeyanthi S Periyakoil
Journal:  J Palliat Med       Date:  2007-08       Impact factor: 2.947

5.  Illness and disease.

Authors:  A Reading
Journal:  Med Clin North Am       Date:  1977-07       Impact factor: 5.456

6.  Perspectives on care at the close of life. Psychological considerations, growth, and transcendence at the end of life: the art of the possible.

Authors:  S D Block
Journal:  JAMA       Date:  2001-06-13       Impact factor: 56.272

7.  On saying goodbye: acknowledging the end of the patient-physician relationship with patients who are near death.

Authors:  Anthony L Back; Robert M Arnold; James A Tulsky; Walter F Baile; Kelly A Fryer-Edwards
Journal:  Ann Intern Med       Date:  2005-04-19       Impact factor: 25.391

8.  Nonabandonment: a central obligation for physicians.

Authors:  T E Quill; C K Cassel
Journal:  Ann Intern Med       Date:  1995-03-01       Impact factor: 25.391

9.  End-of-Life care: guidelines for patient-centered communication.

Authors:  Quyen Ngo-Metzger; Kristin J August; Malathi Srinivasan; Solomon Liao; Frank L Meyskens
Journal:  Am Fam Physician       Date:  2008-01-15       Impact factor: 3.292

Review 10.  Dependence and caring in clinical communication: the relevance of attachment and other theories.

Authors:  Peter Salmon; Bridget Young
Journal:  Patient Educ Couns       Date:  2009-01-20
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  9 in total

1.  Giving Bad News.

Authors:  Walter F Baile
Journal:  Oncologist       Date:  2015-07-16

2.  Assessing Patient-Centered Communication in Cancer Care: Measures for Surveillance of Communication Outcomes.

Authors:  Richard L Street; Kathleen M Mazor; Neeraj K Arora
Journal:  J Oncol Pract       Date:  2016-09-30       Impact factor: 3.840

3.  Allowing awe in life.

Authors:  Daniel E Epner
Journal:  Am J Clin Exp Urol       Date:  2018-04-01

4.  Families' Sense of Abandonment When Patients Are Referred to Hospice.

Authors:  Takuya Odagiri; Tatsuya Morita; Maho Aoyama; Yoshiyuki Kizawa; Satoru Tsuneto; Yasuo Shima; Mitsunori Miyashita
Journal:  Oncologist       Date:  2018-03-22

5.  Regional Multiteam Systems in Cancer Care Delivery.

Authors:  Katia Noyes; John R T Monson; Irfan Rizvi; Ann Savastano; James S A Green; Nick Sevdalis
Journal:  J Oncol Pract       Date:  2016-09-30       Impact factor: 3.840

6.  Health literacy, physician trust, and diabetes-related self-care activities in Hispanics with limited resources.

Authors:  Richard O White; Chandra Y Osborn; Tebeb Gebretsadik; Sunil Kripalani; Russell L Rothman
Journal:  J Health Care Poor Underserved       Date:  2013-11

7.  Bridging the Gap: Exploring the Impact of Hospital Isolation on Peer Relationships Among Children and Adolescents with a Malignant Brain Tumor.

Authors:  Jami-Leigh Sawyer; Faye Mishna; Eric Bouffet; Michael Saini; Randi Zlotnik-Shaul
Journal:  Child Adolesc Social Work J       Date:  2021-05-18

Review 8.  Care at the Very End-of-Life: Dying Cancer Patients and Their Chosen Family's Needs.

Authors:  Katherine Clark
Journal:  Cancers (Basel)       Date:  2017-01-24       Impact factor: 6.639

9.  Communication Tools to Support Advance Care Planning and Hospital Care During the COVID-19 Pandemic: A Design Process.

Authors:  Joanna Paladino; Suzanne Mitchell; Namita Mohta; Joshua R Lakin; Nora Downey; Erik K Fromme; Sue Gullo; Evan Benjamin; Justin J Sanders
Journal:  Jt Comm J Qual Patient Saf       Date:  2020-10-24
  9 in total

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