Literature DB >> 20730665

Online support groups for women with metastatic breast cancer: a feasibility pilot study.

Ruvanee P Vilhauer1, Martha K McClintock, Alicia K Matthews.   

Abstract

This study evaluates the feasibility and acceptability of an online peer support group intervention for women with metastatic breast cancer (MBC). Feasibility, participation rates, participant satisfaction, and preliminary outcomes are examined from a 1999 to 2000 study of online peer support groups for women with MBC. Thirty women with MBC were randomly assigned to either an immediate online support condition or a waitlisted control condition. For practical and ethical reasons, the waitlist period was limited to 2 months. Six monthly assessments were collected using standardized measurement instruments. Intervention retention rates (73%), assessment completion rates (range = 100%-86% in retained participants) and support group participation (M = 5.9 days per week) were high compared to other published studies on this population. Reported satisfaction with the intervention was also high. An online support intervention study is feasible using a waitlist control. Despite the feasibility and acceptability of the study procedures, the study design and small sample size precluded definitive conclusions about intervention effectiveness. As such, study procedures should be replicated with a larger more representative sample to examine the effectiveness of the intervention.

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Mesh:

Year:  2010        PMID: 20730665     DOI: 10.1080/07347332.2010.504504

Source DB:  PubMed          Journal:  J Psychosoc Oncol        ISSN: 0734-7332


  9 in total

Review 1.  Social media for breast cancer survivors: a literature review.

Authors:  Angela L Falisi; Kara P Wiseman; Anna Gaysynsky; Jennifer K Scheideler; Daniel A Ramin; Wen-Ying Sylvia Chou
Journal:  J Cancer Surviv       Date:  2017-06-10       Impact factor: 4.442

Review 2.  Online support groups for women with breast cancer.

Authors:  Eilis McCaughan; Kader Parahoo; Irene Hueter; Laurel Northouse; Ian Bradbury
Journal:  Cochrane Database Syst Rev       Date:  2017-03-10

3.  A mixed methods pilot and feasibility open trial of internet-delivered cognitive behaviour therapy (iCanADAPT Advanced) for people with advanced cancer with depression and/or anxiety.

Authors:  M J Murphy; J M Newby; P Butow; A Joubert; L Kirsten; J Shaw; H L Shepherd; G Andrews
Journal:  Internet Interv       Date:  2021-08-30

Review 4.  Peer support of complex health behaviors in prevention and disease management with special reference to diabetes: systematic reviews.

Authors:  Edwin B Fisher; Renée I Boothroyd; Emily A Elstad; Laura Hays; Amy Henes; Gary R Maslow; Clayton Velicer
Journal:  Clin Diabetes Endocrinol       Date:  2017-05-25

5.  Engagement with a social networking intervention for cancer-related distress.

Authors:  Jason E Owen; Erin O Bantum; Amanda Gorlick; Annette L Stanton
Journal:  Ann Behav Med       Date:  2015-04

6.  Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients.

Authors:  Lorenzo Montali; Edoardo Zulato; Alessandra Frigerio; Elisa Frangi; Elisabetta Camussi
Journal:  J Community Psychol       Date:  2021-08-24

7.  Defining the Role of the Online Therapeutic Facilitator: Principles and Guidelines Developed for Couplelinks, an Online Support Program for Couples Affected by Breast Cancer.

Authors:  Wendy Carter; Karen Fergus; Saunia Ahmad; Deborah McLeod; Joanne Stephen
Journal:  JMIR Cancer       Date:  2015-04-14

8.  Establishing best practices in cancer online support groups: protocol for a realist review.

Authors:  Jacqueline L Bender; Stephanie Babinski; Geoff Wong; Andrea C Tricco; Marina Englesakis; Alaina B Cyr; Henry Potts; Olga Perski; Mary Jane Esplen; Colleen Young; Richard Wassersug; Victoria Forster; Janet Papadakos; Charlene Soobiah; Colleen Fox; Alison Gothard-Huang; Holly Witteman
Journal:  BMJ Open       Date:  2021-11-03       Impact factor: 2.692

Review 9.  The Role of Online Support Groups in Helping Individuals Affected by HIV and AIDS: Scoping Review of the Literature.

Authors:  Neil S Coulson; Heather Buchanan
Journal:  J Med Internet Res       Date:  2022-07-26       Impact factor: 7.076

  9 in total

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