Literature DB >> 20718585

'They all supported me but I felt like I suddenly didn't belong anymore': an exploration of perceived disadvantages to online support seeking.

Sumaira Malik1, Neil S Coulson.   

Abstract

In recent years, there has been a significant rise in the number of online support communities dedicated to issues surrounding infertility. The aim of this study was to focus on investigating the perceived disadvantages of online infertility support communities from the perspective of those who access and participate in them. A total of 295 participants completed an online questionnaire about their use of online support communities. Responses were analysed using inductive content analysis. Since the majority of respondents were women, the results of the study largely reflect the experiences of the female population. Over half of the sample (57.9%) reported experiencing disadvantages to online support. Content analysis revealed that the most commonly cited disadvantages were reading about negative experiences (10.9%), reading about other peoples pregnancies (8.8%), inaccurate information (7.8%) and its addictive (5.8%). These results suggest that there are many perceived disadvantages to online infertility support communities. While some of these disadvantages reflect fears commonly cited in the literature, there are also unique disadvantages associated with the experience of infertility and its treatment. The study highlights a number of important areas in which health professionals and community moderators could intervene to better support and improve the online experiences of patients experiencing infertility.

Entities:  

Mesh:

Year:  2010        PMID: 20718585     DOI: 10.3109/0167482X.2010.504870

Source DB:  PubMed          Journal:  J Psychosom Obstet Gynaecol        ISSN: 0167-482X            Impact factor:   2.949


  11 in total

1.  'I felt less alone knowing I could contribute to the forum': psychological distress and use of an online infertility peer support forum.

Authors:  Siobhan Bernadette Laura O'Connell; Eden Noah Gelgoot; Paul Henry Grunberg; Joy Schinazi; Deborah Da Costa; Cindy-Lee Dennis; Zeev Rosberger; Phyllis Zelkowitz
Journal:  Health Psychol Behav Med       Date:  2021-02-11

2.  "It's like she's talking about me" - Exploring the value and potential impact of a YouTube film presenting a qualitative evidence synthesis about chronic pain: An analysis of online comments.

Authors:  Francine Toye; Kate Seers; Karen Barker
Journal:  Can J Pain       Date:  2020-09-24

3.  Designing an ICT self-management service: suggestions from persons with type 2 diabetes.

Authors:  Cecilia Gardsten; Christina Mörtberg; Kerstin Blomqvist
Journal:  Health Technol (Berl)       Date:  2017-01-11

4.  Seeking virtual social support through blogging: A content analysis of published blog posts written by people with chronic pain.

Authors:  Samuel Tsai; Emma Crawford; Jenny Strong
Journal:  Digit Health       Date:  2018-05-16

5.  The Correlation between Using Social Networks and the General Health of Multiple Sclerosis Patients.

Authors:  Atefeh Basirat; Hadi Raeisi Shahraki; Hamid Reza Farpour; Leila Habibi
Journal:  Mult Scler Int       Date:  2020-07-09

6.  Assessment of Adaptive Engagement and Support Model for People With Chronic Health Conditions in Online Health Communities: Combined Content Analysis.

Authors:  Brian M Green; Katelyn Tente Van Horn; Ketki Gupte; Megan Evans; Sara Hayes; Amrita Bhowmick
Journal:  J Med Internet Res       Date:  2020-07-07       Impact factor: 5.428

7.  Infertility patients' need and preferences for online peer support.

Authors:  Paul H Grunberg; Cindy-Lee Dennis; Deborah Da Costa; Phyllis Zelkowitz
Journal:  Reprod Biomed Soc Online       Date:  2018-11-15

8.  The Pros and Cons of Getting Engaged in an Online Social Community Embedded Within Digital Cognitive Behavioral Therapy for Insomnia: Survey Among Users.

Authors:  Neil S Coulson; Richard Smedley; Sophie Bostock; Simon D Kyle; Rosie Gollancz; Annemarie I Luik; Peter Hames; Colin A Espie
Journal:  J Med Internet Res       Date:  2016-04-25       Impact factor: 5.428

Review 9.  Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals.

Authors:  Edin Smailhodzic; Wyanda Hooijsma; Albert Boonstra; David J Langley
Journal:  BMC Health Serv Res       Date:  2016-08-26       Impact factor: 2.655

10.  Searching the Internet for Infertility Information: A Survey of Patient Needs and Preferences.

Authors:  Felicia Brochu; Stephanie Robins; Skye A Miner; Paul H Grunberg; Peter Chan; Kirk Lo; Hananel E G Holzer; Neal Mahutte; Sophia Ouhilal; Togas Tulandi; Phyllis Zelkowitz
Journal:  J Med Internet Res       Date:  2019-12-12       Impact factor: 5.428

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