Literature DB >> 20680855

"It is not an easy decision on HIV, especially in Zambia": opting for silence, limited disclosure and implicit understanding to retain a wider identity.

Virginia Anne Bond1.   

Abstract

As universal testing moves onto the HIV agenda, there is a need for more understanding of the relatively low uptake of HIV testing and the dynamics of disclosure in Sub-Saharan Africa. Despite the expanding provision of anti-retroviral therapy in Zambia since 2004, disclosure of HIV status - beyond a closed network - remains limited. Drawing on 20 years of living and working in a high HIV prevalence country, research on HIV-related stigma and existing literature on disclosure, this paper explores the reasons that lie behind limited disclosure. Unravelling why HIV disclosure remains "a navigation in a moral field", the pattern of silence around HIV and the routine and often subtle presence of HIV in daily life reveals two key dynamics. The first dynamic is shifting public/private boundaries and retaining a wider identity. People living with HIV juggle the pragmatic advantages of disclosing to a limited circle with the importance of maintaining not only their moral integrity, status and (for some) professional and group identity but also of maintaining their privacy. A more public disclosure ("speaking it" more widely) shifts private-public boundaries and can be threatening, dangerous and can fix identity. Furthermore, disclosure carries obligations which, given high levels of poverty, can be hard to meet. The second dynamic is a pattern of implicit understanding. It can be easier in a context of high HIV prevalence to opt for silence, in its various forms, with the presence of HIV implicitly understood but not often explicitly spoken about. Although this gives more room for manoeuvre and for respect, silence too can be dangerous and certain situations dictate that it is better to breach the silence. More aggressive promotion of HIV testing needs to both respect and consider how to work within these existing dynamics to facilitate safe disclosure.

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Year:  2010        PMID: 20680855     DOI: 10.1080/09540121003720994

Source DB:  PubMed          Journal:  AIDS Care        ISSN: 0954-0121


  19 in total

1.  'If I am given antiretrovirals I will think I am nearing the grave': Kenyan HIV serodiscordant couples' attitudes regarding early initiation of antiretroviral therapy.

Authors:  Kathryn Curran; Kenneth Ngure; Bettina Shell-Duncan; Sophie Vusha; Nelly R Mugo; Renee Heffron; Connie Celum; Jared M Baeten
Journal:  AIDS       Date:  2014-01-14       Impact factor: 4.177

2.  From 'half-dead' to being 'free': resistance to HIV stigma, self-disclosure and support for PMTCT/HIV care among couples living with HIV in Kenya.

Authors:  Sydney A Spangler; Lisa L Abuogi; Eliud Akama; Elizabeth A Bukusi; Anna Helova; Pamela Musoke; Wafula Z Nalwa; Thomas A Odeny; Maricianah Onono; Iris Wanga; Janet M Turan
Journal:  Cult Health Sex       Date:  2017-08-16

3.  Situating HIV Stigma in Health Facility Settings: A Qualitative Study of Experiences and Perceptions of Stigma in 'Clinics' among Healthcare Workers and Service Users in Zambia.

Authors:  Sanny Mulubale; Sue Clay; Corinne Squire; Virginia Bond; Kasoka Kasoka; Lucy Stackpool-Moore; Tessa Oraro-Lawrence; Mutale Chonta; Chipo Chiiya
Journal:  J Int Assoc Provid AIDS Care       Date:  2022 Jan-Dec

4.  Maximizing HIV partner notification opportunities for index patients and their sexual partners in Malawi.

Authors:  G Kamanga; L Brown; P Jawati; D Chiwanda; N Nyirenda
Journal:  Malawi Med J       Date:  2015-12       Impact factor: 0.875

5.  Early HIV disclosure and nondisclosure among men and women on antiretroviral treatment in Uganda.

Authors:  M S Winchester; J W McGrath; D Kaawa-Mafigiri; F Namutiibwa; G Ssendegye; A Nalwoga; E Kyarikunda; J Birungi; S Kisakye; N Ayebazibwe; E Walakira; C B Rwabukwali
Journal:  AIDS Care       Date:  2013-01-29

6.  Women's views on consent, counseling and confidentiality in PMTCT: a mixed-methods study in four African countries.

Authors:  Anita Hardon; Eva Vernooij; Grace Bongololo-Mbera; Peter Cherutich; Alice Desclaux; David Kyaddondo; Odette Ky-Zerbo; Melissa Neuman; Rhoda Wanyenze; Carla Obermeyer
Journal:  BMC Public Health       Date:  2012-01-11       Impact factor: 3.295

7.  The burden of knowing: balancing benefits and barriers in HIV testing decisions. a qualitative study from Zambia.

Authors:  Marte Jürgensen; Mary Tuba; Knut Fylkesnes; Astrid Blystad
Journal:  BMC Health Serv Res       Date:  2012-01-05       Impact factor: 2.655

8.  'Are We Not Human?' Stories of Stigma, Disability and HIV from Lusaka, Zambia and Their Implications for Access to Health Services.

Authors:  Janet A Parsons; Virginia A Bond; Stephanie A Nixon
Journal:  PLoS One       Date:  2015-06-03       Impact factor: 3.240

9.  "Telling my husband I have HIV is too heavy to come out of my mouth": pregnant women's disclosure experiences and support needs following antenatal HIV testing in eastern Uganda.

Authors:  Joseph Rujumba; Stella Neema; Robert Byamugisha; Thorkild Tylleskär; James K Tumwine; Harald K Heggenhougen
Journal:  J Int AIDS Soc       Date:  2012       Impact factor: 5.396

10.  Heterogeneous HIV testing preferences in an urban setting in Tanzania: results from a discrete choice experiment.

Authors:  Jan Ostermann; Bernard Njau; Derek S Brown; Axel Mühlbacher; Nathan Thielman
Journal:  PLoS One       Date:  2014-03-18       Impact factor: 3.240

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