Literature DB >> 20601641

Achieving medical stability: Wives' experiences with heart failure.

Judith E Hupcey1, Kimberly Fenstermacher, Lisa Kitko, Janice Penrod.   

Abstract

The incidence of heart failure continues to rise as innovative treatments are developed. Despite life-prolonging interventions, morbidity and mortality in patients younger than 65 remain high. Few studies have focused on this younger cohort and/or their family caregivers as they navigate the complex illness trajectories manifested in heart failure. Instrumental case studies were employed to present exemplars for each of the five identified heart failure trajectories. Culling data from a longitudinal study of female spousal caregivers, each case study represents a wife's discussion of caring for a husband (<65 years) in response to the husband's changing heart failure trajectory. The goal of medical stability and the notion of uncertainty permeate throughout the case studies. Suggestions for supporting these wives are presented.

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Year:  2010        PMID: 20601641      PMCID: PMC3817857          DOI: 10.1177/1054773810371119

Source DB:  PubMed          Journal:  Clin Nurs Res        ISSN: 1054-7738            Impact factor:   2.075


  26 in total

1.  Illness trajectories and palliative care.

Authors:  Scott A Murray; Marilyn Kendall; Kirsty Boyd; Aziz Sheikh
Journal:  BMJ       Date:  2005-04-30

Review 2.  Management of the patient with congestive heart failure using outpatient, home, and palliative care.

Authors:  S E Quaglietti; J E Atwood; L Ackerman; V Froelicher
Journal:  Prog Cardiovasc Dis       Date:  2000 Nov-Dec       Impact factor: 8.194

3.  The lived experience of spouses of patients with a left ventricular assist device before heart transplantation.

Authors:  Jessie Casida
Journal:  Am J Crit Care       Date:  2005-03       Impact factor: 2.228

4.  An ethnographic approach to understanding the illness experiences of patients with congestive heart failure and their family members.

Authors:  J S Mahoney
Journal:  Heart Lung       Date:  2001 Nov-Dec       Impact factor: 2.210

Review 5.  Family caregiving and congestive heart failure. Review and analysis.

Authors:  Gerard J Molloy; Derek W Johnston; Miles D Witham
Journal:  Eur J Heart Fail       Date:  2005-06       Impact factor: 15.534

Review 6.  Review article: a model of palliative care for heart failure.

Authors:  Judith E Hupcey; Janice Penrod; Kimberly Fenstermacher
Journal:  Am J Hosp Palliat Care       Date:  2009-04-08       Impact factor: 2.500

Review 7.  Consensus statement: Palliative and supportive care in advanced heart failure.

Authors:  Sarah J Goodlin; Paul J Hauptman; Robert Arnold; Kathleen Grady; Ray E Hershberger; Jean Kutner; Frederick Masoudi; John Spertus; Kathleen Dracup; James F Cleary; Ruth Medak; Kathy Crispell; Ileana Piña; Brad Stuart; Christy Whitney; Thomas Rector; Joan Teno; Dale G Renlund
Journal:  J Card Fail       Date:  2004-06       Impact factor: 5.712

8.  Removing the boundaries: palliative care for patients with heart failure.

Authors:  Gillian Horne; Sheila Payne
Journal:  Palliat Med       Date:  2004-05       Impact factor: 4.762

9.  Families dealing with advanced heart failure: a challenge and an opportunity.

Authors:  Helen E Callahan
Journal:  Crit Care Nurs Q       Date:  2003 Jul-Sep

10.  Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community.

Authors:  Scott A Murray; Kirsty Boyd; Marilyn Kendall; Allison Worth; T Fred Benton; Hans Clausen
Journal:  BMJ       Date:  2002-10-26
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  6 in total

1.  Palliative Needs of Spousal Caregivers of Patients with Heart Failure Followed at Specialized Heart Failure Centers.

Authors:  Judith E Hupcey; Kimberly Fenstermacher; Lisa Kitko; Janet Fogg
Journal:  J Hosp Palliat Nurs       Date:  2011-05-01       Impact factor: 1.918

2.  Patients' Perceptions of Illness Severity in Advanced Heart Failure.

Authors:  Judith E Hupcey; Lisa Kitko; Windy Alonso
Journal:  J Hosp Palliat Nurs       Date:  2016-04       Impact factor: 1.918

Review 3.  Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review.

Authors:  J Nicholas Dionne-Odom; Stephanie A Hooker; David Bekelman; Deborah Ejem; Gwen McGhan; Lisa Kitko; Anna Strömberg; Rachel Wells; Meka Astin; Zehra Gok Metin; Gisella Mancarella; Salpy V Pamboukian; Lorraine Evangelista; Harleah G Buck; Marie A Bakitas
Journal:  Heart Fail Rev       Date:  2017-09       Impact factor: 4.214

4.  Caring for a spouse with end-stage heart failure through implantation of a left ventricular assist device as destination therapy.

Authors:  Lisa A Kitko; Judith E Hupcey; Juliann H Gilchrist; John P Boehmer
Journal:  Heart Lung       Date:  2013-03-14       Impact factor: 2.210

Review 5.  Towards Optimal Heart Failure Care: Couples-Oriented Strategies to Improve Patient Adherence and Health Outcomes.

Authors:  Samia R Toukhsati; David L Hare
Journal:  Curr Cardiol Rev       Date:  2016

6.  Living with Chronic Heart Failure: Exploring Patient, Informal Caregiver, and Healthcare Professional Perceptions.

Authors:  Natasa Sedlar; Mitja Lainscak; Jerneja Farkas
Journal:  Int J Environ Res Public Health       Date:  2020-04-13       Impact factor: 3.390

  6 in total

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