Literature DB >> 20590873

Comprehensive elements of a physiotherapy exercise programme in haemophilia--a global perspective.

G Blamey1, A Forsyth, N Zourikian, L Short, N Jankovic, P De Kleijn, T Flannery.   

Abstract

SUMMARY: Exercise programmes for people with haemophilia are usually designed and implemented to help manage the recovery after a haemarthrosis or a muscle bleed, or as a tool to help prevent bleeding episodes from occurring. In this article, we have identified individual components of exercise that are often applied as separate entities, but may also need to be implemented in concert for optimized impact. Although it may be necessary on occasion to bias an exercise programme towards one component over the others, it is important to recognize that the various elements of exercise are not mutually exclusive. Decreased flexibility, strength and proprioception, will result in an impairment of balance and a loss of function. Programme design should whenever possible be guided by proven methodology in terms of how each component is incorporated, and more specifically how long to perform the exercise for and how many repetitions should be performed. We recognize, however, that this is not always possible and that there is significant value in drawing from the experience of clinicians with specialized training in the management of haemophilia. In this study, both perspectives are presented, providing reference-based reviews of the mechanics of the various elements of exercise as well as the expert opinions of the authors. Research that has been completed using patients with conditions other than haemophilia may or may not have a direct application with the bleeding disorders population, but the programme design based on principles of tissue healing in addition to disease specific knowledge should be encouraged.

Entities:  

Mesh:

Year:  2010        PMID: 20590873     DOI: 10.1111/j.1365-2516.2010.02312.x

Source DB:  PubMed          Journal:  Haemophilia        ISSN: 1351-8216            Impact factor:   4.287


  16 in total

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Authors:  Paola Giordano; Giuseppe Lassandro; Riccardina Tesse; Stefania Longo; Federica Valente; Anna Rita Cappiello; Antonio Coppola
Journal:  Blood Transfus       Date:  2012-07-04       Impact factor: 3.443

2.  Promoting physical activity in people with haemophilia: the MEMO (Movement for persons with haEMOphilia) expert consensus project.

Authors:  Chiara Biasoli; Erminia Baldacci; Antonio Coppola; Raimondo De Cristofaro; Matteo N D Di Minno; Giuseppe Lassandro; Silvia Linari; Maria E Mancuso; Mariasanta Napolitano; Gianluigi Pasta; Angiola Rocino
Journal:  Blood Transfus       Date:  2021-10-15       Impact factor: 3.443

3.  Pain and pain management in haemophilia.

Authors:  Günter Auerswald; Gerry Dolan; Anne Duffy; Cedric Hermans; Victor Jiménez-Yuste; Rolf Ljung; Massimo Morfini; Thierry Lambert; Silva Zupančić Šalek
Journal:  Blood Coagul Fibrinolysis       Date:  2016-12       Impact factor: 1.276

4.  The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia.

Authors:  M W Skinner; C Chai-Adisaksopha; R Curtis; N Frick; M Nichol; D Noone; B O'Mahony; D Page; J S Stonebraker; A Iorio
Journal:  Pilot Feasibility Stud       Date:  2018-02-27

Review 5.  Programmed Sports Therapy (PST) in People with Haemophilia (PwH) "Sports Therapy Model for Rare Diseases".

Authors:  Thomas Hilberg
Journal:  Orphanet J Rare Dis       Date:  2018-03-05       Impact factor: 4.123

6.  Establishing an online physical exercise program for people with hemophilia.

Authors:  Barbara Wagner; Axel Seuser; Steffen Krüger; Marie Luca Herzig; Thomas Hilberg; Cihan Ay; Timothy Hasenöhrl; Richard Crevenna
Journal:  Wien Klin Wochenschr       Date:  2019-09-18       Impact factor: 1.704

7.  Muscle strengthening intervention for boys with haemophilia: Developing and evaluating a best-practice exercise programme with boys, families and health-care professionals.

Authors:  Ferhana Hashem; David Stephensen; Wendy I Drechsler; Melanie Bladen; Liz Carroll; Pellatt-Higgins Tracy; Eirini-Christina Saloniki
Journal:  Health Expect       Date:  2020-08-17       Impact factor: 3.377

8.  The Utilization of Rehabilitation in Patients with Hemophilia A in Taiwan: A Nationwide Population-Based Study.

Authors:  Chien-Min Chen; Yao-Hsu Yang; Chia-Hao Chang; Chih-Cheng Chen; Pau-Chung Chen
Journal:  PLoS One       Date:  2016-09-30       Impact factor: 3.240

9.  Protocol for a feasibility randomised controlled trial of a musculoskeletal exercise intervention versus usual care for children with haemophilia.

Authors:  Ferhana Hashem; Melanie Bladen; Liz Carroll; Charlene Dodd; Wendy I Drechsler; David Lowery; Vishal Patel; T Pellatt-Higgins; Eirini Saloniki; David Stephensen
Journal:  BMJ Open       Date:  2019-08-01       Impact factor: 2.692

10.  Results of feasibility and safety of randomised controlled trial of a musculoskeletal exercise intervention versus usual care for children with haemophilia.

Authors:  Melanie Bladen; Liz Carroll; Charlene Dodd; Wendy Drechsler; Ferhana Hashem; Vishal Patel; Tracy Pellatt-Higgins; Eirini Saloniki; David Stephensen
Journal:  Haemophilia       Date:  2020-05-06       Impact factor: 4.287

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