Literature DB >> 20579206

Life stories and biography: a means of connecting family and staff to people with dementia.

Ursula Kellett1, Wendy Moyle, Margaret McAllister, Christopher King, Fran Gallagher.   

Abstract

AIMS: This article assesses the Family Biography Workshop (FBW) designed to support family and staff to co-construct the history of the person with dementia in residential care.
BACKGROUND: Family-staff conflict in residential dementia care is a major stressor that disturbs effective relationships and contributes to stress. Biographical research has been found to improve communication and promote family-staff relations. Few studies focus on family biography as an approach that promotes positive relations that translate into inclusive care interactions.
DESIGN: A qualitative descriptive approach was used to assess the influence of participation in the FBW and the impact of developing biographical knowledge on family-staff caregiver attitudes, perceptions of roles, conflict and the subsequent management of stress using participatory care practices.
METHODS: The FBW process involved seven family caregivers, seven staff and one researcher working collaboratively through a series of six weekly two-hour sessions, designed to help them build a biography of the person with dementia.
RESULTS: For family caregivers, reviving memories of their relatives as 'whole' persons enabled some to 'stand outside' and see beyond the disease-saturated context. For staff, 'opening possibilities' of 'seeing' the resident within the family context empowered them to engage in genuine participatory practices. Residents benefited from being connected as staffs''know how' in initiating and engaging developed.
CONCLUSION: Future research will examine the effects of the FBW on the dynamics of family-staff roles and relationships. This research aims to reduce stress from role inadequacy, task burden, poor relationships and improve staff attitudes towards family participation. RELEVANCE TO CLINICAL PRACTICE: This study substantiated the FBW by revealing understanding of the meaning of biography work for family and relatives in care; providing effective support that empowered staff to confidently relate; and fostering engagement in inclusive care practices that encouraged residents' initiatives.

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Year:  2010        PMID: 20579206     DOI: 10.1111/j.1365-2702.2009.03116.x

Source DB:  PubMed          Journal:  J Clin Nurs        ISSN: 0962-1067            Impact factor:   3.036


  14 in total

1.  Janus at the Crossroads: Perspectives on Long-term Care Trajectories for Older Women With Dementia in a Canadian Context.

Authors:  Denise S Cloutier; Margaret J Penning
Journal:  Gerontologist       Date:  2016-11-16

2.  [Biographical work in inpatient long-term care for people with dementia: potential of the DEMIAN nursing concept].

Authors:  C Berendonk; S Stanek; M Schönit; R Kaspar; M Bär; A Kruse
Journal:  Z Gerontol Geriatr       Date:  2011-02       Impact factor: 1.281

3.  A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT.

Authors:  Katherine Froggatt; Ashley Best; Frances Bunn; Girvan Burnside; Joanna Coast; Lesley Dunleavy; Claire Goodman; Ben Hardwick; Clare Jackson; Julie Kinley; Anne Davidson Lund; Jennifer Lynch; Paul Mitchell; Gareth Myring; Shakil Patel; Guillermo Perez Algorta; Nancy Preston; David Scott; Kate Silvera; Catherine Walshe
Journal:  Health Technol Assess       Date:  2020-01       Impact factor: 4.014

4.  Family visits in shared-housing arrangements for residents with dementia--a cross-sectional study on the impact on residents' quality of life.

Authors:  Johannes Gräske; Saskia Meyer; Andreas Worch; Karin Wolf-Ostermann
Journal:  BMC Geriatr       Date:  2015-02-25       Impact factor: 3.921

5.  Life story resources in dementia care: a review.

Authors:  Jacqueline Kindell; Simon Burrow; Ray Wilkinson; John David Keady
Journal:  Qual Ageing Older Adults       Date:  2014

6.  The use of life stories and its influence on persons with dementia, their relatives and staff - a systematic mixed studies review.

Authors:  Vigdis Abrahamsen Grøndahl; Mona Persenius; Carina Bååth; Ann Karin Helgesen
Journal:  BMC Nurs       Date:  2017-06-02

7.  Effects of the Namaste Care Family programme on quality of life of nursing home residents with advanced dementia and on family caregiving experiences: study protocol of a cluster-randomised controlled trial.

Authors:  Hanneke J A Smaling; Karlijn J Joling; Peter M van de Ven; Judith E Bosmans; Joyce Simard; Ladislav Volicer; Wilco P Achterberg; Anneke L Francke; Jenny T van der Steen
Journal:  BMJ Open       Date:  2018-10-15       Impact factor: 2.692

Review 8.  Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions.

Authors:  Frances Bunn; Jennifer Lynch; Claire Goodman; Rachel Sharpe; Catherine Walshe; Nancy Preston; Katherine Froggatt
Journal:  BMC Geriatr       Date:  2018-12-06       Impact factor: 3.921

9.  Effect of Patients' Life Stories in Bringing Meaning to Nursing Home Care.

Authors:  Jane Qu; Laura N Goldman; Joanne E Wilkinson
Journal:  PRiMER       Date:  2019-03-29

10.  Effective Dementia Education and Training for the Health and Social Care Workforce: A Systematic Review of the Literature.

Authors:  Claire A Surr; Cara Gates; Donna Irving; Jan Oyebode; Sarah Jane Smith; Sahdia Parveen; Michelle Drury; Alison Dennison
Journal:  Rev Educ Res       Date:  2017-07-31
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