Literature DB >> 20491954

Towards comprehensive care in transition for young people with haemophilia.

V R Breakey1, V S Blanchette, P H B Bolton-Maggs.   

Abstract

In the last two decades, the transition from paediatric to adult care has received increasing attention. Health care professionals have become more aware of the unique needs of adolescents and young adults with chronic illnesses and efforts have been made to support youth through this challenging time of change. For patients with haemophilia and their families, there is little evidence regarding best practice for transition of care. We reviewed the transition literature and current guidelines for transition for patients with haemophilia. We advocate that comprehensive haemophilia care includes a conscientious approach to transition of care that should start in early adolescence and be developmentally sensitive. In considering the needs of patients and parents, we must engage both paediatric and adult health care providers to make the transfer smooth and ensure the best care possible during this time.
© 2010 Blackwell Publishing Ltd.

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Year:  2010        PMID: 20491954     DOI: 10.1111/j.1365-2516.2010.02249.x

Source DB:  PubMed          Journal:  Haemophilia        ISSN: 1351-8216            Impact factor:   4.287


  11 in total

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3.  Masculinity Challenges for Men With Severe Hemophilia.

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Review 4.  Transition to Adult Care for Obstructive Sleep Apnea.

Authors:  Austin Heffernan; Uzair Malik; Russell Cheng; Shaun Yo; Indra Narang; Clodagh M Ryan
Journal:  J Clin Med       Date:  2019-12-02       Impact factor: 4.241

Review 5.  The existing scenario of haemophilia care in Canada and China - A review.

Authors:  Rohan Pratap; Monali Misra; Varun N; Suman Morampudi; Anand Patil; Jayachandra Reddy
Journal:  Hematol Transfus Cell Ther       Date:  2019-10-27

6.  Health professionals' and managers' definitions of developmentally appropriate healthcare for young people: conceptual dimensions and embedded controversies.

Authors:  Albert Farre; Victoria Wood; Janet E McDonagh; Jeremy R Parr; Debbie Reape; Tim Rapley
Journal:  Arch Dis Child       Date:  2016-03-04       Impact factor: 3.791

7.  Adherence to prophylaxis in adolescents and young adults with severe haemophilia: a qualitative study with healthcare professionals.

Authors:  S van Os; N Ryder; D P Hart; N Troop
Journal:  Health Psychol Behav Med       Date:  2020-01-28

8.  Shared topics on the experience of people with haemophilia living in the UK and the USA and the influence of individual and contextual variables: Results from the HERO qualitative study.

Authors:  Laura Palareti; Silvia Potì; Frederica Cassis; Francesca Emiliani; Davide Matino; Alfonso Iorio
Journal:  Int J Qual Stud Health Well-being       Date:  2015-11-16

9.  The value of usability testing for Internet-based adolescent self-management interventions: "Managing Hemophilia Online".

Authors:  Vicky R Breakey; Ashley V Warias; Danial M Ignas; Meghan White; Victor S Blanchette; Jennifer N Stinson
Journal:  BMC Med Inform Decis Mak       Date:  2013-10-04       Impact factor: 2.796

10.  Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders.

Authors:  P F Limperg; L Haverman; H Maurice-Stam; M Coppens; C Valk; M J H A Kruip; J Eikenboom; M Peters; M A Grootenhuis
Journal:  Qual Life Res       Date:  2017-09-12       Impact factor: 4.147

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