Literature DB >> 20466740

Family centred care? Facilities, information and support for parents in UK neonatal units.

M E Redshaw1, K E StC Hamilton.   

Abstract

OBJECTIVE: To assess how UK neonatal units address parent communication, support and information needs during neonatal care and the early months after discharge.
DESIGN: All units were invited to participate in a survey of practice and policy relating to the needs of parents with babies admitted for neonatal care.
SETTING: Neonatal care, UK. MAIN OUTCOME MEASURES: Proportions of units by unit level providing specific facilities, information, policies and support mechanisms.
RESULTS: Facilities, information and support for parents vary and can be quite limited: units may have as many as 10 babies receiving intensive or high dependency care in one room; 24% have no rooms in which to accommodate one or two babies only; 96% have at least one room for parents to stay overnight, 27% of rooms have ensuite amenities; 72% have written information about the equipment used, 64 % on ventilation and 91% on breastfeeding; parents have free access to notes in 20% of units and in 14% parents are excluded from ward rounds; 27% have a policy on keeping in contact with parents, 47% did not have the services of a social worker, psychologist, counsellor or psychiatrist and only 15% have a unit-based family care nurse.
CONCLUSIONS: Elements of unit policy and practice that support family-centred care are variably in place currently and units need to address the gaps.

Mesh:

Year:  2010        PMID: 20466740     DOI: 10.1136/adc.2009.163717

Source DB:  PubMed          Journal:  Arch Dis Child Fetal Neonatal Ed        ISSN: 1359-2998            Impact factor:   5.747


  9 in total

1.  Cost-effectiveness of a new internet-based monitoring tool for neonatal post-discharge home care.

Authors:  Valentina Isetta; Carme Lopez-Agustina; Esther Lopez-Bernal; Maribel Amat; Montserrat Vila; Carme Valls; Daniel Navajas; Ramon Farre
Journal:  J Med Internet Res       Date:  2013-02-18       Impact factor: 5.428

2.  'Being in a womb' or 'playing musical chairs': the impact of place and space on infant feeding in NICUs.

Authors:  Renée Flacking; Fiona Dykes
Journal:  BMC Pregnancy Childbirth       Date:  2013-09-23       Impact factor: 3.007

3.  Does family-centred neonatal discharge planning reduce healthcare usage? A before and after study in South West England.

Authors:  Jenny C Ingram; Jane E Powell; Peter S Blair; David Pontin; Maggie Redshaw; Sarah Manns; Lucy Beasant; Heather Burden; Debbie Johnson; Claire Rose; Peter J Fleming
Journal:  BMJ Open       Date:  2016-03-10       Impact factor: 2.692

4.  "Giving us hope": Parent and neonatal staff views and expectations of a planned family-centred discharge process (Train-to-Home).

Authors:  Jenny Ingram; Maggie Redshaw; Sarah Manns; Lucy Beasant; Debbie Johnson; Peter Fleming; David Pontin
Journal:  Health Expect       Date:  2016-12-21       Impact factor: 3.377

5.  Mothers' experience of maternity and neonatal care when babies die: A quantitative study.

Authors:  Maggie Redshaw; Jane Henderson
Journal:  PLoS One       Date:  2018-12-05       Impact factor: 3.240

6.  Parental views on attending neonatal intensive care ward rounds.

Authors:  Claire Caldwell; Victoria MacBean; Katie Hunt; Anne Greenough
Journal:  BMJ Paediatr Open       Date:  2019-04-12

7.  Integrating a sense of coherence into the neonatal environment.

Authors:  Gill Thomson; Victoria Hall Moran; Anna Axelin; Fiona Dykes; Renée Flacking
Journal:  BMC Pediatr       Date:  2013-05-22       Impact factor: 2.125

8.  Parents' views on care of their very premature babies in neonatal intensive care units: a qualitative study.

Authors:  Gillian Russell; Alexandra Sawyer; Heike Rabe; Jane Abbott; Gillian Gyte; Lelia Duley; Susan Ayers
Journal:  BMC Pediatr       Date:  2014-09-13       Impact factor: 2.125

9.  Effectiveness of Alberta Family-Integrated Care on Neonatal Outcomes: A Cluster Randomized Controlled Trial.

Authors:  Madeleine Murphy; Vibhuti Shah; Karen Benzies
Journal:  J Clin Med       Date:  2021-12-14       Impact factor: 4.241

  9 in total

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