Literature DB >> 2044499

Impact of the Children's Epilepsy Program on parents.

M A Lewis1, C L Hatton, I Salas, B Leake, N Chiofalo.   

Abstract

A randomized controlled trial was conducted in Santiago, Chile to test the efficacy of the Children's Epilepsy Program, a child-centered, family-focused intervention developed and pilot tested in Los Angeles, CA, U.S.A., using a counseling model for parents of children with seizure disorders to help them (a) deal with their anger, resentment, and grief related to the loss of a normal child; (b) increase their knowledge about caring for their child; (c) reduce anxieties related to having a child with a seizure disorder; and (d) improve their decision-making skills. All parents were pretested and then retested 5 months after the educational interventions. Parents in the experimental group (n = 185) and their children separately attended four 1 1/2-h sessions and then met together at the end of each session to share learning experiences. Comparison group parents (n = 180) and their children jointly attended three 2-h lecture sessions followed by question-and-answer periods. Although parents' overall knowledge of epilepsy was relatively high initially, it improved considerably in both comparison and experimental groups. With regard to anxiety, at the 5-month evaluation, experimental group parents and mothers in particular were more likely than control parents to state that they were less anxious (p less than 0.001), and their anxiety, as measured by the Taylor Manifest Anxiety scale, was significantly reduced (p less than 0.01).

Entities:  

Mesh:

Year:  1991        PMID: 2044499     DOI: 10.1111/j.1528-1157.1991.tb04665.x

Source DB:  PubMed          Journal:  Epilepsia        ISSN: 0013-9580            Impact factor:   5.864


  6 in total

1.  A qualitative study of epilepsy self-management barriers and facilitators in Black children and caregivers in Arkansas.

Authors:  Debopam Samanta; Vimala Elumalai; Megan Leigh Hoyt; Avani C Modi; Martha Sajatovic
Journal:  Epilepsy Behav       Date:  2021-12-18       Impact factor: 2.937

Review 2.  Care delivery and self-management strategies for children with epilepsy.

Authors:  Nigel Fleeman; Peter M Bradley; Mariangela Panebianco; Anika Sharma
Journal:  Cochrane Database Syst Rev       Date:  2022-04-27

Review 3.  Psychopathology and psychological adjustment in children and adolescents with epilepsy.

Authors:  Soraya Otero
Journal:  World J Pediatr       Date:  2009-01-27       Impact factor: 2.764

4.  Youth With Epilepsy: Development of a Model of Children's Attitudes Toward Their Condition.

Authors:  Joan K Austin; David W Dunn; Susan M Perkins; Jianzhao Shen
Journal:  Child Health Care       Date:  2006

Review 5.  Care delivery and self-management strategies for children with epilepsy.

Authors:  Nigel Fleeman; Peter M Bradley
Journal:  Cochrane Database Syst Rev       Date:  2018-03-01

6.  Improving health, wellbeing and parenting skills in parents of children with special health care needs and medical complexity - a scoping review.

Authors:  Sally Bradshaw; Danai Bem; Karen Shaw; Beck Taylor; Christopher Chiswell; Mary Salama; Eve Bassett; Geetinder Kaur; Carole Cummins
Journal:  BMC Pediatr       Date:  2019-08-30       Impact factor: 2.125

  6 in total

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