Literature DB >> 20444772

The lonely battle for dignity: individuals struggling with multiple sclerosis.

Vibeke Lohne1, Trygve Aasgaard, Synnøve Caspari, Ashild Slettebø, Dagfinn Nåden.   

Abstract

Much is known about the phenomenon of dignity, yet there is still a need for implementing this understanding in clinical practice. The main purpose of this study was to find out how persons suffering from multiple sclerosis experience and understand dignity and violation in the context of a rehabilitation ward. A phenomenological-hermeneutic approach was used to extract the meaningful content of narratives from 14 patients with multiple sclerosis. Data were collected by personal research interviews. The findings revealed three main themes: (1) 'invisibly captured in fatigue'; (2) 'fighters' law: one who does not ask will not receive'; and (3) 'dignity is humanity'. The essence of the findings in this study is that dignity is humanity. According to the participants, dignity requires time and is experienced only in a context of empathy and mutual confidence.

Entities:  

Mesh:

Year:  2010        PMID: 20444772     DOI: 10.1177/0969733010361439

Source DB:  PubMed          Journal:  Nurs Ethics        ISSN: 0969-7330            Impact factor:   2.874


  11 in total

1.  Human Value, Dignity, and the Presence of Others.

Authors:  Jill Graper Hernandez
Journal:  HEC Forum       Date:  2015-09

2.  The interplay between autonomy and dignity: summarizing patients voices.

Authors:  Charlotte Delmar
Journal:  Med Health Care Philos       Date:  2013-11

3.  Attitudes of Korean adults towards human dignity: a Q methodology approach.

Authors:  Kae Hwa Jo; Gyeong-Ju An; Ardith Z Doorenbos
Journal:  Jpn J Nurs Sci       Date:  2011-08-12       Impact factor: 1.418

4.  PICO, PICOS and SPIDER: a comparison study of specificity and sensitivity in three search tools for qualitative systematic reviews.

Authors:  Abigail M Methley; Stephen Campbell; Carolyn Chew-Graham; Rosalind McNally; Sudeh Cheraghi-Sohi
Journal:  BMC Health Serv Res       Date:  2014-11-21       Impact factor: 2.655

5.  Dignity as an empirical lifeworld construction-in the field of surgery in Denmark.

Authors:  Tina Seidelin Rasmussen; Charlotte Delmar
Journal:  Int J Qual Stud Health Well-being       Date:  2014-07-17

6.  Dignity as honour-wound: an experiential and relational view.

Authors:  Kathleen Galvin; Les Todres
Journal:  J Eval Clin Pract       Date:  2014-10-23       Impact factor: 2.431

7.  A preliminary study of Patient Dignity Inventory validation among patients hospitalized in an acute psychiatric ward.

Authors:  Rosaria Di Lorenzo; Giulio Cabri; Eleonora Carretti; Giacomo Galli; Nina Giambalvo; Giulia Rioli; Serena Saraceni; Giulia Spiga; Cinzia Del Giovane; Paola Ferri
Journal:  Neuropsychiatr Dis Treat       Date:  2017-01-23       Impact factor: 2.570

Review 8.  'It struck at the heart of who I thought I was': A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosis.

Authors:  Jane Desborough; Crystal Brunoro; Anne Parkinson; Katrina Chisholm; Mark Elisha; Janet Drew; Vanessa Fanning; Christian Lueck; Anne Bruestle; Matthew Cook; Hanna Suominen; Antonio Tricoli; Adam Henschke; Christine Phillips
Journal:  Health Expect       Date:  2020-06-24       Impact factor: 3.377

Review 9.  Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability.

Authors:  Daniel Ståhl; Ylva Bjereld; Anna Dunér
Journal:  J Multidiscip Healthc       Date:  2022-02-24

Review 10.  A Qualitative Metasynthesis of the Experience of Fatigue Across Five Chronic Conditions.

Authors:  Rosario B Jaime-Lara; Brittany C Koons; Lea Ann Matura; Nancy A Hodgson; Barbara Riegel
Journal:  J Pain Symptom Manage       Date:  2019-12-20       Impact factor: 3.612

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