Literature DB >> 20440954

National Organization for Rare Disorders (NORD): providing advocacy for people with rare disorders.

Stefanie Putkowski1.   

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Year:  2010        PMID: 20440954     DOI: 10.1177/1942602X09352796

Source DB:  PubMed          Journal:  NASN Sch Nurse        ISSN: 1942-602X


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  4 in total

1.  Clinical features and outcomes of 98 children and adults with dense deposit disease.

Authors:  Der-Fa Lu; Mikyung Moon; Lynne D Lanning; Ann Marie McCarthy; Richard J H Smith
Journal:  Pediatr Nephrol       Date:  2011-11-22       Impact factor: 3.714

Review 2.  Novel clinical trial design and analytic methods to tackle challenges in therapeutic development in rare diseases.

Authors:  Yimei Li; Rima Izem
Journal:  Ann Transl Med       Date:  2022-09

Review 3.  Randomized and non-randomized designs for causal inference with longitudinal data in rare disorders.

Authors:  Rima Izem; Robert McCarter
Journal:  Orphanet J Rare Dis       Date:  2021-11-23       Impact factor: 4.123

4.  Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases.

Authors:  Caron Molster; Leanne Youngs; Emma Hammond; Hugh Dawkins
Journal:  Orphanet J Rare Dis       Date:  2012-08-10       Impact factor: 4.123

  4 in total

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