Literature DB >> 20419774

Optimizing health care for adults with spina bifida.

Thomas S Webb1.   

Abstract

Survival into adulthood for individuals with spina bifida has significantly improved over the last 40 years with the majority of patients now living as adults. Despite this growing population of adult patients who have increased medical needs compared to the general population, including spina bifida (SB)-specific care, age-related secondary disabilities, and general adult medical needs, there is little published information about the natural history of SB in adulthood. There are few published studies of medical conditions, interventions, or long-term complications in this population. This article will provide a review of the medical issues of adults with SB, highlighting areas that are different than pediatric care, and areas of needed research.

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Mesh:

Year:  2010        PMID: 20419774     DOI: 10.1002/ddrr.99

Source DB:  PubMed          Journal:  Dev Disabil Res Rev        ISSN: 1940-5529


  10 in total

1.  Total energy expenditure and body composition of children with developmental disabilities.

Authors:  Michele Polfuss; Kathleen J Sawin; Paula E Papanek; Linda Bandini; Bethany Forseth; Andrea Moosreiner; Kimberley Zvara; Dale A Schoeller
Journal:  Disabil Health J       Date:  2017-12-28       Impact factor: 2.554

2.  Surgeries and Health Outcomes Among Patients With Spina Bifida.

Authors:  Noreen B Alabi; Judy Thibadeau; John S Wiener; Mike J Conklin; Mark S Dias; Kathleen J Sawin; Rodolfo Valdez
Journal:  Pediatrics       Date:  2018-09       Impact factor: 7.124

3.  Fractures in spina bifida from childhood to young adulthood.

Authors:  A Trinh; P Wong; J Brown; S Hennel; P R Ebeling; P J Fuller; F Milat
Journal:  Osteoporos Int       Date:  2016-08-24       Impact factor: 4.507

4.  Introduction: Spina bifida--a multidisciplinary perspective.

Authors:  Jack M Fletcher; Timothy J Brei
Journal:  Dev Disabil Res Rev       Date:  2010

Review 5.  Multidisciplinary spina bifida clinic: the Chicago experience.

Authors:  Nathan A Shlobin; Elizabeth B Yerkes; Vineeta T Swaroop; Sandi Lam; David G McLone; Robin M Bowman
Journal:  Childs Nerv Syst       Date:  2022-07-23       Impact factor: 1.532

6.  Demystifying Spina Bifida Guidelines Using a Periodicity Schedule.

Authors:  Jessica Y Chaney; Asma A Taha; Joseph D Pinter
Journal:  Top Spinal Cord Inj Rehabil       Date:  2022-08-17

7.  The enteric nervous system and the musculature of the colon are altered in patients with spina bifida and spinal cord injury.

Authors:  Marjanne den Braber-Ymker; Martin Lammens; Michel J A M van Putten; Iris D Nagtegaal
Journal:  Virchows Arch       Date:  2017-01-06       Impact factor: 4.064

Review 8.  Sexual dysfunction and infertility in the male spina bifida patient.

Authors:  Nanfu Deng; Nannan Thirumavalavan; Jonathan A Beilan; Alexander J Tatem; Mark S Hockenberry; Alexander W Pastuszak; Larry I Lipshultz
Journal:  Transl Androl Urol       Date:  2018-12

9.  Myelomeningocele: need for long-time complex follow-up-an observational study.

Authors:  Thomas Bakketun; Nils Erik Gilhus; Tiina Rekand
Journal:  Scoliosis Spinal Disord       Date:  2019-03-08

10.  Adults with spina bifida: A cross-sectional study of health issues and living conditions.

Authors:  Martina Bendt; Hanna Gabrielsson; Dorothee Riedel; Göran Hagman; Claes Hultling; Erika Franzén; Mats Eriksson; Åke Seiger
Journal:  Brain Behav       Date:  2020-07-07       Impact factor: 2.708

  10 in total

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