Literature DB >> 20374966

Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: an exploratory comparative design.

Josep Lluís Conde-Sala1, Josep Garre-Olmo, Oriol Turró-Garriga, Joan Vilalta-Franch, Secundino López-Pousa.   

Abstract

BACKGROUND: Research into burden among spouse and adult-child caregivers of patients with Alzheimer's disease has generated contradictory results as regards the group which suffers the greatest burden and the factors underlying any differences.
OBJECTIVES: The aim of the present study was to identify and compare the factors associated with caregiver burden among spouse and adult-child caregivers.
DESIGN: Cross-sectional analytic study. SETTINGS: All clinical subjects had been referred on an out-patient basis to the Memory and Dementia Assessment Unit of the Santa Caterina Hospital in Girona (Spain). PARTICIPANTS: Data were collected from 251 patients and their caregivers, 112 with spouse and 139 with adult-child caregivers.
METHODS: The association between caregiver burden and the socio-demographic and clinical variables of both patients and caregivers was analysed, the results being compared for spouse vs. adult-child caregivers. Burden was analysed using a multivariate linear regression including all the variables for the two groups of caregivers.
RESULTS: The results show greater burden among adult-child caregivers (p<.05), who experience more feelings of guilt (p<.001). In both groups the behavioural and psychological symptoms of patients were correlated with burden (p<.001). Living with the patient has a notable influence on burden among adult children (p<.001). Husbands, wives, daughters and sons, in this order, showed increasing levels of burden (p<.05) and progressively worse mental health (p<.01). However, the correlations between burden and mental health were strongest in daughters (p<.001).
CONCLUSION: The differences in burden between spouse and adult-child caregivers were not associated with age, physical health or clinical factors of the patients. Overall burden was greater among adult-child caregivers, especially those who lived with the patient and who had other family duties. Feelings of guilt were associated with not living with the patient, and there was a strong correlation between burden and mental health. These results support the hypothesis that spouses regard caregiving as part of their marital duties, whereas for adult children such tasks imply an important change in their lifestyle. Copyright (c) 2010 Elsevier Ltd. All rights reserved.

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Year:  2010        PMID: 20374966     DOI: 10.1016/j.ijnurstu.2010.03.001

Source DB:  PubMed          Journal:  Int J Nurs Stud        ISSN: 0020-7489            Impact factor:   5.837


  48 in total

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4.  Association between informal caregiving and cellular aging in the survey of the health of wisconsin: the role of caregiving characteristics, stress, and strain.

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5.  Worry about Performance: Unravelling the Relationship between 'Doing More' and 'Doing Better'.

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6.  Integrating Family Caregivers of People With Alzheimer's Disease and Dementias into Clinical Appointments: Identifying Potential Best Practices.

Authors:  Joan M Griffin; Catherine Riffin; Rachel D Havyer; Virginia S Biggar; Meryl Comer; Theresa L Frangiosa; Lauren R Bangerter
Journal:  J Appl Gerontol       Date:  2019-10-11

7.  The relationship among caregiving characteristics, caregiver strain, and health-related quality of life: evidence from the Survey of the Health of Wisconsin.

Authors:  Kristin Litzelman; Halcyon G Skinner; Ronald E Gangnon; F Javier Nieto; Kristen Malecki; Whitney P Witt
Journal:  Qual Life Res       Date:  2014-11-27       Impact factor: 4.147

8.  Family Caregiver Role and Burden Related to Gender and Family Relationships.

Authors:  Marie-Luise Friedemann; Kathleen C Buckwalter
Journal:  J Fam Nurs       Date:  2014-04-28       Impact factor: 3.818

9.  Effect of study partner on the conduct of Alzheimer disease clinical trials.

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10.  Caregiving Subgroups Differences in the Associations Between the Resilience Resources and Life Satisfaction.

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