Literature DB >> 20233116

The family of the multiple sclerosis patient: a psychosocial perspective.

Anastasios B Kouzoupis1, Thomas Paparrigopoulos, Marina Soldatos, George N Papadimitriou.   

Abstract

The present review addresses some of the issues pertaining to the family whose member suffers from multiple sclerosis (MS), the implications that arise, and the potential therapeutic interventions. The family role can be better conceptualized from a psychosocial view mainly in a systemic perspective. From this point of view, MS can be classified, in the context of chronic illnesses, according to several 'non-medical' characteristics of the disease, such as age at onset and course. Furthermore, MS challenges the individual roles, needs and coping styles of all members of the family, and establishes a frail balance in the relationships, which needs to be reset. Future research ought to focus on specific problems, such as the identification of members of MS families at risk of developing depression and anxiety, and application of the optimal psychotherapeutic interventions. Research on psychosocial and psycho-educational interventions that improve social support and decrease burden of illness would certainly ameliorate clinical practice.

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Mesh:

Year:  2010        PMID: 20233116     DOI: 10.3109/09540261003589588

Source DB:  PubMed          Journal:  Int Rev Psychiatry        ISSN: 0954-0261


  9 in total

1.  Validation of the Social Provisions Scale in people with multiple sclerosis.

Authors:  Chung-Yi Chiu; Robert W Motl; Nicole Ditchman
Journal:  Rehabil Psychol       Date:  2016-04-18

Review 2.  Life issues in multiple sclerosis.

Authors:  Rex D Simmons
Journal:  Nat Rev Neurol       Date:  2010-09-21       Impact factor: 42.937

3.  Experiences of persons with Multiple Sclerosis with lifestyle adjustment-A qualitative interview study.

Authors:  Saskia Elkhalii-Wilhelm; Anna Sippel; Karin Riemann-Lorenz; Christopher Kofahl; Jutta Scheiderbauer; Sigrid Arnade; Ingo Kleiter; Stephan Schmidt; Christoph Heesen
Journal:  PLoS One       Date:  2022-05-27       Impact factor: 3.752

4.  Unmet needs of patients feeling severely affected by multiple sclerosis in Germany: a qualitative study.

Authors:  Maren Galushko; Heidrun Golla; Julia Strupp; Ute Karbach; Claudia Kaiser; Nicole Ernstmann; Holger Pfaff; Christoph Ostgathe; Raymond Voltz
Journal:  J Palliat Med       Date:  2014-02-14       Impact factor: 2.947

5.  Being parents with epilepsy: thoughts on its consequences and difficulties affecting their children.

Authors:  Helena Gauffin; Gullvi Flensner; Anne-Marie Landtblom
Journal:  Neuropsychiatr Dis Treat       Date:  2015-05-27       Impact factor: 2.570

6.  Experiencing the care of a family member with Crohn's disease: a qualitative study.

Authors:  Sofía García-Sanjuán; Manuel Lillo-Crespo; María José Cabañero-Martínez; Miguel Richart-Martínez; Ángela Sanjuan-Quiles
Journal:  BMJ Open       Date:  2019-10-22       Impact factor: 2.692

Review 7.  Needs and Experiences of Children and Adolescents with Pediatric Multiple Sclerosis and Their Caregivers: A Systematic Review.

Authors:  Shashank Ghai; Elisabeth Kasilingam; Roberta Lanzillo; Masa Malenica; Vincent van Pesch; Niamh Caitlin Burke; Antonio Carotenuto; Rebecca Maguire
Journal:  Children (Basel)       Date:  2021-05-25

8.  Family Functioning and Multiple Sclerosis: Study Protocol of a Multicentric Italian Project.

Authors:  Marialaura Di Tella; Virginia Perutelli; Giuseppina Miele; Luigi Lavorgna; Simona Bonavita; Stefania Federica De Mercanti; Lidia Mislin Streito; Marinella Clerico; Lorys Castelli
Journal:  Front Psychol       Date:  2021-06-09

Review 9.  Paediatric Multiple Sclerosis: A Scoping Review of Patients' and Parents' Perspectives.

Authors:  Maria Luca; Nerea Ortega-Castro; Francesco Patti
Journal:  Children (Basel)       Date:  2021-12-25
  9 in total

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