Literature DB >> 20208302

Building community participatory research coalitions from the ground up: the Philadelphia area research community coalition.

Jerry C Johnson1, U Tara Hayden, Nicole Thomas, Jennine Groce-Martin, Thomas Henry, Terry Guerra, Alia Walker, William West, Marina Barnett, Shiriki Kumanyika.   

Abstract

BACKGROUND: A coalition of formal, large organizations and informal, grassroots organizations, recruited through an open process, contrasts with the usual practice of developing a community-based participatory research (CBPR) coalition with a small number of well-developed organizations.
OBJECTIVES: This paper describes the process, developmental challenges, and accomplishments of the Philadelphia Area Research Community Coalition (PARCC).
METHODS: The University of Pennsylvania-Cheyney University of Pennsylvania EXPORT Center established the PARCC, an academic-community research partnership of twenty-two diverse organizations of variable size and with variable experience in health research. The EXPORT Center provided the infrastructure and staff support needed to engage in sustained, face-to-face community outreach and to nurture, coordinate, and facilitate the 2.5-year developmental process. The start-up process, governing principles, activities, challenges, and lessons learned are described. LESSONS LEARNED: Since its inception, PARCC established core work groups, a governance structure, operating principles, research training activities, community health education projects, and several PARCC-affiliated research projects. Organizations across the spectrum of developmental capacity were major contributors to PARCC. The success of PARCC was based on committed and trusted leadership, preexisting relationships, trust among members from the community and academia, research training, extensive time commitment of members to the coalition's work, and rapid development of work group activities.
CONCLUSIONS: Building a CBPR coalition from the ground up involving organizations of diverse size and at various stages of development presents unique challenges that can be overcome with committed leadership, clear governance principles, and appropriate infrastructure. Engagement in community-based research during the early stages, while still developing trust, structure, and governance procedures can be accomplished as long as training of all partners is conducted and the trust building is not ignored.

Mesh:

Year:  2009        PMID: 20208302     DOI: 10.1353/cpr.0.0052

Source DB:  PubMed          Journal:  Prog Community Health Partnersh        ISSN: 1557-0541


  6 in total

1.  Using community-based participatory research to develop the PARTNERS youth violence prevention program.

Authors:  Stephen S Leff; Duane E Thomas; Nicole A Vaughn; Nicole A Thomas; Julie Paquette MacEvoy; Melanie A Freedman; Saburah Abdul-Kabir; Joseph Woodlock; Terry Guerra; Ayana S Bradshaw; Elizabeth M Woodburn; Rachel K Myers; Joel A Fein
Journal:  Prog Community Health Partnersh       Date:  2010

2.  Results from the Data & Democracy initiative to enhance community-based organization data and research capacity.

Authors:  Amy Carroll-Scott; Peggy Toy; Roberta Wyn; Jazmin I Zane; Steven P Wallace
Journal:  Am J Public Health       Date:  2012-05-17       Impact factor: 9.308

3.  Success in Long-Standing Community-Based Participatory Research (CBPR) Partnerships: A Scoping Literature Review.

Authors:  Barbara L Brush; Graciela Mentz; Megan Jensen; Brianna Jacobs; Kate M Saylor; Zachary Rowe; Barbara A Israel; Laurie Lachance
Journal:  Health Educ Behav       Date:  2019-10-16

4.  Methods for linking community views to measureable outcomes in a youth violence prevention program.

Authors:  Catherine C McDonald; Therese S Richmond; Terry Guerra; Nicole A Thomas; Alia Walker; Charles C Branas; Thomas R Tenhave; Nicole A Vaughn; Stephen S Leff; Alice J Hausman
Journal:  Prog Community Health Partnersh       Date:  2012

5.  Consolidated Framework for Collaboration Research derived from a systematic review of theories, models, frameworks and principles for cross-sector collaboration.

Authors:  Larissa Calancie; Leah Frerichs; Melinda M Davis; Eliana Sullivan; Ann Marie White; Dorothy Cilenti; Giselle Corbie-Smith; Kristen Hassmiller Lich
Journal:  PLoS One       Date:  2021-01-04       Impact factor: 3.752

6.  LIGHT: A Church-Based Curriculum for Training African American Lay Health Workers to Support Advance Care Planning and End-of-Life Decision-Making.

Authors:  Jerry C Johnson; Tara Hayden; Lynne Allen Taylor; Arthur Gilbert; Marshall Paul Hughes Mitchell
Journal:  Health Equity       Date:  2020-12-30
  6 in total

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