Literature DB >> 20189565

A partnership approach to service needs assessment with family caregivers of an aging relative living at home: a qualitative analysis of the experiences of caregivers and practitioners.

Louise Lévesque1, Francine Ducharme, Chantal Caron, Elizabeth Hanson, Lennart Magnusson, Janet Nolan, Mike Nolan.   

Abstract

BACKGROUND: As the global population ages, support for family caregivers who provide the bulk of care to community-dwelling older people is becoming ever more important. However, in many countries, homecare-service practitioners currently do not follow a systematic approach to assessing and responding to caregiver needs.
OBJECTIVES: The aim of this study was to explore the experiences of caregivers and practitioners who took part in a field test of the Family Caregivers Support Agreement (FCSA) tool, a modified version of the Carers Outcome Agreement Tool (COAT) initially developed as the result of an Anglo-Swedish study. Both the COAT and the FCSA are designed to facilitate partnerships between caregivers and practitioners so that needs assessment and subsequent support services are negotiated and agreed so as to meet caregiver expectations. DESIGN AND PARTICIPANTS: A qualitative design was adopted and data were collected through focus groups with six practitioners (nurses and social workers) working in two Local Community Service Centres in the province of Quebec (Canada). These practitioners had previously completed the FCSA tool with 17 primary caregivers of frail elderly relatives who were clients of homecare services. Individual interviews were conducted with the caregivers to explore their experiences. Data were analyzed to identify significant themes, from the perspectives of caregivers and practitioners, which provided insights into their experiences and the strategies used by practitioners to facilitate partnership working.
FINDINGS: To facilitate meaningful exchanges, practitioners adopted strategies such as sensitive listening and the use of enabling questions to identify and contextualize caregiver needs and to highlight the ability of caregivers to find their own creative solutions to the challenges they face. The caregivers described experiencing a climate of trust that allowed them to express their concerns, to reflect upon their situation and to participate in the development of an action plan for their support.
CONCLUSIONS: The study reaffirms findings from Sweden and UK that the use of a tool such as the FCSA enhances partnership working and creates a caregiver-practitioner relationship based on a genuine alliance. As a result, both parties gain new insights into the caring situation. The approach underpinning the FCSA tool has potential for a more widespread application in different contexts. Copyright 2009 Elsevier Ltd. All rights reserved.

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Year:  2010        PMID: 20189565     DOI: 10.1016/j.ijnurstu.2009.12.006

Source DB:  PubMed          Journal:  Int J Nurs Stud        ISSN: 0020-7489            Impact factor:   5.837


  12 in total

1.  An interprofessional approach to shared decision making: an exploratory case study with family caregivers of one IP home care team.

Authors:  France Légaré; Dawn Stacey; Nathalie Brière; Hubert Robitaille; Marie-Claude Lord; Sophie Desroches; Renée Drolet
Journal:  BMC Geriatr       Date:  2014-07-02       Impact factor: 3.921

2.  Unmet support needs of early-onset dementia family caregivers: a mixed-design study.

Authors:  Francine Ducharme; Marie-Jeanne Kergoat; Renée Coulombe; Louise Lévesque; Pascal Antoine; Florence Pasquier
Journal:  BMC Nurs       Date:  2014-12-19

3.  Factors influencing practitioner adoption of carer-led assessment in palliative homecare: A qualitative study of the use of the Carer Support Needs Assessment Tool (CSNAT).

Authors:  Lynn Austin; Gail Ewing; Gunn Grande
Journal:  PLoS One       Date:  2017-06-16       Impact factor: 3.240

4.  The relatives' voice: how do relatives experience participation in reablement? A qualitative study.

Authors:  Kari Margrete Hjelle; Herdis Alvsvåg; Oddvar Førland
Journal:  J Multidiscip Healthc       Date:  2016-12-28

Review 5.  Barriers and enablers in the use of respite interventions by caregivers of people with dementia: an integrative review.

Authors:  Marie-Conception Leocadie; Marie-Hélène Roy; Monique Rothan-Tondeur
Journal:  Arch Public Health       Date:  2018-11-22

6.  Hearing the voices of older adult patients: processes and findings to inform health services research.

Authors:  Sally Fowler Davis; Anne Silvester; Deborah Barnett; Lisa Farndon; Mubarak Ismail
Journal:  Res Involv Engagem       Date:  2019-02-21

7.  Migrant Caregivers of Older People in Spain: Qualitative Insights into Relatives' Experiences.

Authors:  María José Morales-Gázquez; Epifanía Natalia Medina-Artiles; Remedios López-Liria; José Manuel Aguilar-Parra; Rubén Trigueros-Ramos; Jerónimo J González-Bernal; Patricia Rocamora-Pérez
Journal:  Int J Environ Res Public Health       Date:  2020-04-24       Impact factor: 3.390

8.  The Caregiving Health Engagement Scale (CHE-s): development and initial validation of a new questionnaire for measuring family caregiver engagement in healthcare.

Authors:  Serena Barello; Cinzia Castiglioni; Andrea Bonanomi; Guendalina Graffigna
Journal:  BMC Public Health       Date:  2019-11-27       Impact factor: 3.295

9.  Stakeholders' views and experiences of care and interventions for addressing frailty and pre-frailty: A meta-synthesis of qualitative evidence.

Authors:  Barbara D'Avanzo; Rachel Shaw; Silvia Riva; Joao Apostolo; Elzbieta Bobrowicz-Campos; Donata Kurpas; Maria Bujnowska-Fedak; Carol Holland
Journal:  PLoS One       Date:  2017-07-19       Impact factor: 3.240

10.  A Cross-European Study of Informal Carers' Needs in the Context of Caring for Older People, and their Experiences with Professionals Working in Integrated Care Settings.

Authors:  Eliva Atieno Ambugo; Simone R de Bruin; Lina Masana; Julie MacInnes; Nuri Cayuelas Mateu; Terje P Hagen; Borja Arrue
Journal:  Int J Integr Care       Date:  2021-07-08       Impact factor: 5.120

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