Literature DB >> 20187904

You can use my name; you don't have to steal my story--a critique of anonymity in indigenous studies.

Anna-Lydia Svalastog1, Stefan Eriksson.   

Abstract

Our claim in this paper is that not being identified as the data source might cause harm to a person or group. Therefore, in some cases the default of anonymisation should be replaced by a careful deliberation, together with research subjects, of how to handle the issues of identification and confidentiality. Our prime example in this article is community participatory research and similar endeavours on indigenous groups. The theme, content and aim of the research, and the question of how to handle property rights and ownership of research results, as well as who should be in charge of the research process, including the process of creating anonymity, should all be answered, before anonymity is accepted.

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Year:  2010        PMID: 20187904     DOI: 10.1111/j.1471-8847.2010.00276.x

Source DB:  PubMed          Journal:  Dev World Bioeth        ISSN: 1471-8731            Impact factor:   2.294


  3 in total

Review 1.  The commercialization of biospecimens from Indigenous Peoples: A scoping review of benefit-sharing.

Authors:  Tarlynn Tone-Pah-Hote; Nicole Redvers
Journal:  Front Med (Lausanne)       Date:  2022-08-04

2.  Anonymising interview data: challenges and compromise in practice.

Authors:  Benjamin Saunders; Jenny Kitzinger; Celia Kitzinger
Journal:  Qual Res       Date:  2015-10

3.  Health promotion in emerging collectivist communities: A study of dietary acculturation in the South Sudanese community in Logan City, Australia.

Authors:  Adeline Lanham; Edwin Lubari; Danielle Gallegos; Barbara Radcliffe
Journal:  Health Promot J Austr       Date:  2021-05-05
  3 in total

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