Literature DB >> 20179018

A qualitative exploration of adolescents' experiences of chronic fatigue syndrome.

Rebecca Jelbert1, Jacqui Stedmon, Alison Stephens.   

Abstract

The aim of this study is to provide a qualitative perspective of adolescents' experiences of Chronic Fatigue Syndrome (CFS). Five adolescents who were considered to have recovered from CFS participated in semistructured interviews regarding their experience. The transcripts were then analysed using interpretative phenomenological analysis. Five main themes were identified to represent common shared experiences across participants.These related to seeking understanding around the illness, experiences of loss, perceived influences on the illness, difficult emotional experiences, and adolescents' status post recovery. While significant efforts are being made to increase knowledge and understanding of CFS within the child and adolescent population there is still much to be learned, as is evident from this direct account of adolescents' experiences. We identify implications for clinical practice and suggestions for future research in light of listening to the adolescents' stories.

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Year:  2010        PMID: 20179018     DOI: 10.1177/1359104509340940

Source DB:  PubMed          Journal:  Clin Child Psychol Psychiatry        ISSN: 1359-1045            Impact factor:   2.544


  10 in total

1.  Can linguistic analysis be used to identify whether adolescents with a chronic illness are depressed?

Authors:  Lauren Stephanie Jones; Emma Anderson; Maria Loades; Rebecca Barnes; Esther Crawley
Journal:  Clin Psychol Psychother       Date:  2020-01-09

Review 2.  Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood.

Authors:  Amberly Brigden; Maria Loades; Anna Abbott; Joanne Bond-Kendall; Esther Crawley
Journal:  Arch Dis Child       Date:  2017-06-28       Impact factor: 3.791

3.  Psychological and demographic factors associated with fatigue and social adjustment in young people with severe chronic fatigue syndrome/myalgic encephalomyelitis: a preliminary mixed-methods study.

Authors:  Sheila Ali; Lucy Adamczyk; Mary Burgess; Trudie Chalder
Journal:  J Behav Med       Date:  2019-01-25

4.  What stops children with a chronic illness accessing health care: a mixed methods study in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME).

Authors:  Carly M Webb; Simon M Collin; Toity Deave; Andrew Haig-Ferguson; Amy Spatz; Esther Crawley
Journal:  BMC Health Serv Res       Date:  2011-11-11       Impact factor: 2.655

5.  Health related quality of life in adolescents with chronic fatigue syndrome: a cross-sectional study.

Authors:  Anette Winger; Gunnvald Kvarstein; Vegard Bruun Wyller; Mirjam Ekstedt; Dag Sulheim; Even Fagermoen; Milada Cvancarova Småstuen; Sølvi Helseth
Journal:  Health Qual Life Outcomes       Date:  2015-07-03       Impact factor: 3.186

6.  Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): perspectives of health professionals from specialist services.

Authors:  Roxanne M Parslow; Alison Shaw; Kirstie L Haywood; Esther Crawley
Journal:  BMC Pediatr       Date:  2017-02-01       Impact factor: 2.125

Review 7.  Children's experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review and meta-ethnography of qualitative studies.

Authors:  Roxanne M Parslow; Sarah Harris; Jessica Broughton; Adla Alattas; Esther Crawley; Kirstie Haywood; Alison Shaw
Journal:  BMJ Open       Date:  2017-01-13       Impact factor: 2.692

8.  Subacute fatigue in primary care - two sides of the story.

Authors:  Katrin Hulme; Paul Little; Abigail Burrows; Anna Julia; Rona Moss-Morris
Journal:  Br J Health Psychol       Date:  2019-03-08

9.  What matters to children with CFS/ME? A conceptual model as the first stage in developing a PROM.

Authors:  Roxanne Parslow; Aarti Patel; Lucy Beasant; Kirstie Haywood; Debbie Johnson; Esther Crawley
Journal:  Arch Dis Child       Date:  2015-10-09       Impact factor: 3.791

10.  A qualitative investigation of eating difficulties in adolescents with chronic fatigue syndrome/myalgic encephalomyelitis.

Authors:  Sarah Harris; Matthew Gilbert; Lucy Beasant; Catherine Linney; Jessica Broughton; Esther Crawley
Journal:  Clin Child Psychol Psychiatry       Date:  2016-07-26       Impact factor: 2.544

  10 in total

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