Literature DB >> 20173300

Telling stories about illness and disability: the limits and lessons of narrative.

Rebecca Garden1.   

Abstract

Autobiographical narratives of illness and disability are influential in popular and medical discourses of illness and disability, in part because these narratives represent illness and disability within a sociocultural context, intersecting with other categories of difference. Clinicians can benefit patients through a critical understanding of the formal and social conventions that shape illness and disability narratives and the effect these conventions can have on the lived experience of illness and disability. I analyze the 2003 edition of Lucy Grealy's Autobiography of a Face to illustrate these socio-narrative conventions, especially in light of an afterword that significantly revises the ending to Grealy's narrative. I explore the parallels between narrative conventions-such as the "recovery narrative"-and caregivers' expectations that shape the role of the "good patient," as well as the resistance to conventions of closure, represented by the "renegotiated ending."

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Year:  2010        PMID: 20173300     DOI: 10.1353/pbm.0.0135

Source DB:  PubMed          Journal:  Perspect Biol Med        ISSN: 0031-5982            Impact factor:   1.416


  5 in total

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Journal:  J Med Humanit       Date:  2015-12

2.  A Narrative Approach to Healing Chronic Illness.

Authors:  Thomas R Egnew
Journal:  Ann Fam Med       Date:  2018-03       Impact factor: 5.166

3.  Representing chronic disorders of consciousness: the problem of voice in Allende's Paula.

Authors:  Alice Hall
Journal:  Lit Med       Date:  2014

4.  Reading Between the Lines: A Five-Point Narrative Approach to Online Accounts of Illness.

Authors:  Klay Lamprell; Jeffrey Braithwaite
Journal:  J Med Humanit       Date:  2019-12

5.  Digital hermeneutics: scaled readings of online depression discourses.

Authors:  Inge van de Ven; Tom van Nuenen
Journal:  Med Humanit       Date:  2021-10-14
  5 in total

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