Literature DB >> 20118157

Children with intellectual disability: A gain not a loss: Parental beliefs and family life.

Glòria Durà-Vilà1, Simon Dein, Matthew Hodes.   

Abstract

Raising a child with intellectual disability (ID) has significant consequences for parents and family. The impact of the disability has been found to be influenced by the sociocultural context. This paper aims to show how for some parents the experience of an offspring with ID is not interpreted as a loss but as a gain because of the parents' attribution of sacred meaning. It is suggested that these beliefs influence parental care, and are related to a high level of parental concern and closeness. This has implications for family relationships and life-cycle, as well as help-seeking and service uptake. The article provides a brief review of relevant research studies, a description of two illustrative case reports and discussion, including possible future research directions.

Entities:  

Mesh:

Year:  2010        PMID: 20118157     DOI: 10.1177/1359104509341009

Source DB:  PubMed          Journal:  Clin Child Psychol Psychiatry        ISSN: 1359-1045            Impact factor:   2.544


  6 in total

1.  Longitudinal perspectives of child positive impact on families: relationship to disability and culture.

Authors:  Jan Blacher; Gazi F Begum; George A Marcoulides; Bruce L Baker
Journal:  Am J Intellect Dev Disabil       Date:  2013-03

2.  A Virtuous Appraisal of Heritable Genome Editing.

Authors:  Christopher M Reilly
Journal:  Linacre Q       Date:  2020-03-02

3.  How parents describe the positive aspects of parenting their child who has intellectual disabilities: A systematic review and narrative synthesis.

Authors:  Carole Beighton; Jane Wills
Journal:  J Appl Res Intellect Disabil       Date:  2019-05-20

4.  'It would be much easier if we were just quiet and disappeared': Parents silenced in the experience of caring for children with rare diseases.

Authors:  Genevieve Currie; Joanna Szabo
Journal:  Health Expect       Date:  2019-08-29       Impact factor: 3.377

5.  The Role of Parent/Caregiver with Children Affected by Rare Diseases: Navigating between Love and Fear.

Authors:  Beni Gómez-Zúñiga; Rafael Pulido; Modesta Pousada; Manuel Armayones
Journal:  Int J Environ Res Public Health       Date:  2021-04-02       Impact factor: 3.390

6.  The black hole of dealing with a disability diagnosis: Views of South African rural parents.

Authors:  Vuyelwa V Duma; Ntombekhaya Tshabalala; Gubela Mji
Journal:  Afr J Disabil       Date:  2021-11-29
  6 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.