BACKGROUND AND PURPOSE: Providing information to patients can improve their medical and psychological outcomes. We sought to identify core information needs common to most early-stage prostate cancer patients in participating countries. MATERIAL AND METHODS: Convenience samples of patients treated 3-24 months earlier were surveyed in Canada, England, Italy, Germany, Poland, Portugal, Netherlands, Spain, and Turkey. Each participant rated the importance of addressing each of 92 questions in the diagnosis-to-treatment decision interval (essential/desired/no opinion/avoid). Multivariate modelling determined the extent of variance accounted by covariates, and produced an unbiased prediction of the proportion of essential responses for each question. RESULTS: Six hundred and fifty-nine patients responded (response rates 45-77%). On average, 35-53 questions were essential within each country; similar questions were essential to most patients in most countries. Beyond cross-country similarities, each country showed wide variability in the number and which questions were essential. Multivariate modelling showed an adjusted R-squared with predictors country, age, education, and treatment group of only 6% of the variance. A core of 20 questions were predicted to be essential to >2/3 of patients. CONCLUSIONS: Core information can be identified across countries. However, providing the core should only be a first step; each country should then provide information tailored to the needs of the individual patient. (c) 2010 Elsevier Ireland Ltd. All rights reserved.
BACKGROUND AND PURPOSE: Providing information to patients can improve their medical and psychological outcomes. We sought to identify core information needs common to most early-stage prostate cancerpatients in participating countries. MATERIAL AND METHODS: Convenience samples of patients treated 3-24 months earlier were surveyed in Canada, England, Italy, Germany, Poland, Portugal, Netherlands, Spain, and Turkey. Each participant rated the importance of addressing each of 92 questions in the diagnosis-to-treatment decision interval (essential/desired/no opinion/avoid). Multivariate modelling determined the extent of variance accounted by covariates, and produced an unbiased prediction of the proportion of essential responses for each question. RESULTS: Six hundred and fifty-nine patients responded (response rates 45-77%). On average, 35-53 questions were essential within each country; similar questions were essential to most patients in most countries. Beyond cross-country similarities, each country showed wide variability in the number and which questions were essential. Multivariate modelling showed an adjusted R-squared with predictors country, age, education, and treatment group of only 6% of the variance. A core of 20 questions were predicted to be essential to >2/3 of patients. CONCLUSIONS: Core information can be identified across countries. However, providing the core should only be a first step; each country should then provide information tailored to the needs of the individual patient. (c) 2010 Elsevier Ireland Ltd. All rights reserved.
Authors: R Schaffert; P Rüesch; R Gügler; S Fischer; H-P Schmid; P Spörri; M Zurkirchen; R Ruszat Journal: Urologe A Date: 2011-09 Impact factor: 0.639
Authors: R Schaffert; U Dahinden; T Hess; A Bänziger; P Kuntschik; F Odoni; P Spörri; R T Strebel; J Kamradt; G Tenti; A Mattei; M Müntener; S Subotic; H-P Schmid; P Rüesch Journal: Urologe A Date: 2018-02 Impact factor: 0.639
Authors: J Cockle-Hearne; F Charnay-Sonnek; L Denis; H E Fairbanks; D Kelly; S Kav; K Leonard; E van Muilekom; P Fernandez-Ortega; B T Jensen; S Faithfull Journal: Br J Cancer Date: 2013-09-24 Impact factor: 7.640
Authors: Peter Rüesch; René Schaffert; Susanne Fischer; Deb Feldman-Stewart; Robin Ruszat; Peter Spörri; Markus Zurkirchen; Hans-Peter Schmid Journal: Support Care Cancer Date: 2013-11-28 Impact factor: 3.603