Literature DB >> 20100304

A potential model for the first all Wales mental health service user and carer-led research group.

C Wilson1, A Fothergill, H Rees.   

Abstract

This paper will inform mental health service users and carers on how a University in Wales established a service user and carer-led research group. * The group's primary aim will be to undertake its own service user and carer-led research projects. * Mental health service users have undergone empowerment and research training at a University in Wales. This is an important initiative because it is the first service user and carer-led research group in Wales. * This paper is co-authored by a mental health service user and includes transcripts of service users' stories written in their words. Abstract Service user and carer involvement in research has been gaining momentum in recent years. However, this involvement to date has primarily been as research respondents or 'subjects' in research studies. A group of mental health service users at a University in Wales underwent empowerment and research training to enable them to become active participants in the research process; this training was a necessary step to equip mental health service users with the skills to become independent researchers and to carry out service user-led research. We included transcripts from mental health service users on their views of the empowerment and research training received. We are not reporting, in this paper, on the findings from a research study rather it aims to inform readers how a service user and carer-led research group has been established in Wales. The group has two purposes: (1) to train service users in research methodologies, and thus for them to gain essential research skills; and (2) to undertake their own service user and carer-led research projects thereby implementing the research skills they have acquired from the training. The latter is a primary aim of the group; a future paper will report on its development.

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Year:  2010        PMID: 20100304     DOI: 10.1111/j.1365-2850.2009.01473.x

Source DB:  PubMed          Journal:  J Psychiatr Ment Health Nurs        ISSN: 1351-0126            Impact factor:   2.952


  2 in total

Review 1.  The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit's model.

Authors:  Jim Fitzgibbon; Jessica Baillie; Natalie Simon; Annmarie Nelson
Journal:  Patient Prefer Adherence       Date:  2014-11-04       Impact factor: 2.711

2.  Priority setting in research: user led mental health research.

Authors:  Marjorie Ghisoni; Christine Ann Wilson; Karen Morgan; Bethan Edwards; Natalie Simon; Emma Langley; Helen Rees; Amanda Wells; Philip John Tyson; Phil Thomas; Allen Meudell; Frank Kitt; Brian Mitchell; Alan Bowen; Jason Celia
Journal:  Res Involv Engagem       Date:  2017-02-01
  2 in total

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