Literature DB >> 20085964

Meeting the needs of family carers: an evaluation of three home-based palliative care services in Australia.

Kristina Thomas1, Peter Hudson, Lynn Oldham, Brian Kelly, Tom Trauer.   

Abstract

While policy promotes comprehensive assessment of family career needs and a plan to adequately meet family career needs within palliative care, there is a lack of studies in the Australian context which examine the current type of assessment and types of care provided to family carers. The aims of this study were (1) to determine how career needs are currently assessed and what level of support is available to family carers in three home-based palliative care services within Australia, (2) identify areas for improvement of support to carers and, (3) explore the barriers to offering career support. A focus group and file audit were conducted at two metropolitan and one regional home-based palliative care service in Australia. These palliative care sites reported substantially different levels of services provided to family carers and also reported multiple barriers to providing services for family carers. Only one site had a formal structured procedure to assess career needs and none of the sites used a separate career care plan or offered a structured intervention to assist carers with their role. Family meetings were offered infrequently by most sites. A number of barriers to supporting carers were highlighted including lack of resources, and areas for improvement were also suggested by health professionals from the sites.

Mesh:

Year:  2010        PMID: 20085964     DOI: 10.1177/0269216309351467

Source DB:  PubMed          Journal:  Palliat Med        ISSN: 0269-2163            Impact factor:   4.762


  7 in total

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Journal:  Support Care Cancer       Date:  2014-08-19       Impact factor: 3.603

2.  Reducing the psychological distress of family caregivers of home based palliative care patients: longer term effects from a randomised controlled trial.

Authors:  Peter Hudson; Tom Trauer; Brian Kelly; Moira O'Connor; Kristina Thomas; Rachel Zordan; Michael Summers
Journal:  Psychooncology       Date:  2014-07-04       Impact factor: 3.894

3.  Development of a home-visit nursing scale for helping spousal caregivers of terminal cancer patients develop positive perspectives of their caregiving experiences: a cross-sectional study.

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Journal:  BMJ Open       Date:  2019-12-15       Impact factor: 2.692

4.  Engaging family caregivers and health system partners in exploring how multi-level contexts in primary care practices affect case management functions and outcomes of patients and family caregivers at end of life: a realist synthesis.

Authors:  Grace Warner; Lisa Garland Baird; Brendan McCormack; Robin Urquhart; Beverley Lawson; Cheryl Tschupruk; Erin Christian; Lori Weeks; Kothai Kumanan; Tara Sampalli
Journal:  BMC Palliat Care       Date:  2021-07-16       Impact factor: 3.234

5.  An examination of advanced cancer caregivers' support provided by staff interventions at hospices in Argentina.

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Journal:  Ecancermedicalscience       Date:  2012-11-27

6.  The Melbourne Family Support Program: evidence-based strategies that prepare family caregivers for supporting palliative care patients.

Authors:  Peter Hudson; Sanchia Aranda
Journal:  BMJ Support Palliat Care       Date:  2013-06-04       Impact factor: 3.568

7.  A technology-enhanced model of care for transitional palliative care versus attention control for adult family caregivers in rural or medically underserved areas: study protocol for a randomized controlled trial.

Authors:  Diane E Holland; Catherine E Vanderboom; Jay Mandrekar; Bijan J Borah; Ann Marie Dose; Cory J Ingram; Joan M Griffin
Journal:  Trials       Date:  2020-10-28       Impact factor: 2.279

  7 in total

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