Literature DB >> 20084263

[Not Available].

D Pelchat1, H Lefebvre, J M Bouchard.   

Abstract

The disclosure of a diagnosis of cerebral palsy and its related disabilities is a difficult situation for parents, caregivers and physicians. A literature review shows that for the past 20 years, the number of dissatisfied parents has not changed. The goal of this qualitative and exploratory study - made at the request of the rehabilitation community - is to describe the process by which a diagnosis of cerebral palsy is disclosed, from the perspective of the people involved, and to determine what factors foster or inhibit a trusting relationship. Results show that parents, caregivers and physicians have two different perspectives at the time of disclosure, and it is difficult for them to agree. Parents are overwhelmed by the tragedy, while physicians are focused on the information they are providing. The disclosure creates great uncertainty that can block communication among parents, caregivers and physicians, but it could also be used to stimulate new coping strategies.

Entities:  

Year:  2001        PMID: 20084263      PMCID: PMC2804762     

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN: 1205-7088            Impact factor:   2.253


  7 in total

1.  Ways of telling new parents about their child and his or her mental handicap: a comparison of doctors' and parents' views.

Authors:  A D Nursey; J R Rohde; R D Farmer
Journal:  J Ment Defic Res       Date:  1991-02

Review 2.  Uncertainty in acute illness.

Authors:  M H Mishel
Journal:  Annu Rev Nurs Res       Date:  1997

3.  Parental perceptions of physicians' communication in the informing process.

Authors:  E C Lynch; N H Staloch
Journal:  Ment Retard       Date:  1988-04

4.  [Announcing the trisomy 21 diagnosis and care of the infant in the maternity ward: counseling offered to the parents].

Authors:  A C Dumaret; A Donnelly; D J Rosset
Journal:  J Gynecol Obstet Biol Reprod (Paris)       Date:  1996

5.  First diagnosis of severe mental and physical disability: a study of doctor-parent communication.

Authors:  L Quine; D R Rutter
Journal:  J Child Psychol Psychiatry       Date:  1994-10       Impact factor: 8.982

6.  Disclosing special needs to parents. Have we got it right yet?

Authors:  D Pearson; K Simms; C Ainsworth; S Hill
Journal:  Child Care Health Dev       Date:  1999-01       Impact factor: 2.508

7.  Breaking the news. How families first learn about their child's chronic condition.

Authors:  A W Garwick; J Patterson; F C Bennett; R W Blum
Journal:  Arch Pediatr Adolesc Med       Date:  1995-09
  7 in total

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