Literature DB >> 20030704

Dying at home: community nurses' views on the impact of informal carers on cancer patients' place of death.

B Jack1, M O'Brien.   

Abstract

Giving patients with cancer a choice in where they want to die including the choice to die at home if they so wish, underpin the recent UK government policies and is embedded in the End of Life Care Programme. However, this presents increasing challenges for the informal carers particularly with an increasingly aging population. Despite the policy initiatives, there remain a persistent number of patients with cancer who had chosen to die at home being admitted to hospital in the last days and hours of life. A qualitative study using two focus group interviews with community nurses (district nurses and community specialist palliative care nurses) was undertaken across two primary care trusts in the north-west of England. Data were analysed using a thematic analysis approach. The results indicated that informal carer burden was a key reason for prompting hospital admission. Recommendations for the development of a carer assessment tool with appropriate supportive interventions are made.

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Year:  2009        PMID: 20030704     DOI: 10.1111/j.1365-2354.2009.01103.x

Source DB:  PubMed          Journal:  Eur J Cancer Care (Engl)        ISSN: 0961-5423            Impact factor:   2.520


  8 in total

1.  Predictors of dying at home for patients receiving nursing services in Japan: A retrospective study comparing cancer and non-cancer deaths.

Authors:  Sumie Ikezaki; Naoki Ikegami
Journal:  BMC Palliat Care       Date:  2011-03-03       Impact factor: 3.234

2.  Development of the Carers' Alert Thermometer (CAT) to identify family carers struggling with caring for someone dying at home: a mixed method consensus study.

Authors:  Katherine Knighting; Mary R O'Brien; Brenda Roe; Rob Gandy; Mari Lloyd-Williams; Mike Nolan; Barbara A Jack
Journal:  BMC Palliat Care       Date:  2015-05-03       Impact factor: 3.234

3.  Visiting Nurses' Perspectives on Practices to Achieve End-of-Life Cancer Patients' Wishes for Death at Home: A Qualitative Study.

Authors:  Noriko Teruya; Yoko Sunagawa; Haru Sunagawa; Takehiko Toyosato
Journal:  Asia Pac J Oncol Nurs       Date:  2019 Oct-Dec

4.  Prerequisites for providing effective support to family caregivers within the primary care setting - results of a study series in Germany.

Authors:  Julian Wangler; Michael Jansky
Journal:  BMC Fam Pract       Date:  2021-12-22       Impact factor: 2.497

5.  PalliPA: How can general practices support caregivers of patients at their end of life in a home-care setting? A study protocol.

Authors:  Katja Hermann; Regine Boelter; Peter Engeser; Joachim Szecsenyi; Stephen M Campbell; Frank Peters-Klimm
Journal:  BMC Res Notes       Date:  2012-05-14

6.  "It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life.

Authors:  Emily Harrop; Anthony Byrne; Annmarie Nelson
Journal:  BMC Palliat Care       Date:  2014-04-17       Impact factor: 3.234

7.  The effectiveness of a nurse-led intervention to support family caregivers in end-of-life care: Study protocol for a cluster randomized controlled trial.

Authors:  Yvonne N Becqué; Judith A C Rietjens; Agnes van der Heide; Erica Witkamp
Journal:  J Adv Nurs       Date:  2020-03-03       Impact factor: 3.187

8.  Gaining consensus on family carer needs when caring for someone dying at home to develop the Carers' Alert Thermometer (CAT): a modified Delphi study.

Authors:  Katherine Knighting; Mary R O'Brien; Brenda Roe; Rob Gandy; Mari Lloyd-Williams; Mike Nolan; Barbara A Jack
Journal:  J Adv Nurs       Date:  2015-09-01       Impact factor: 3.187

  8 in total

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