Literature DB >> 20026569

A camp-based intervention targeting independence among individuals with spina bifida.

Kerry O'Mahar1, Grayson N Holmbeck, Barbara Jandasek, Jill Zukerman.   

Abstract

OBJECTIVE: To design and evaluate a camp-based intervention, the goal of which was to increase independence among children, adolescents, and adults with spina bifida.
METHODS: An intervention targeting independence was embedded within a typical week long camp experience. The intervention consisted of the following: collaborative (i.e., parent and camper) goal identification, group sessions consisting of psycho-education and cognitive tools, and goal monitoring by camp counselors. Camper and parent report of demographic variables, goal attainment, spina bifida knowledge, and independence were gathered. Interventionist report of adherence to the treatment manual was also collected.
RESULTS: Campers made significant gains in individual goals, management of spina bifida responsibilities, and independence with general spina bifida tasks, with medium effect sizes observed in goal attainment.
CONCLUSIONS: Results indicated that significant progress was made on individually oriented goals from pre- to post-camp. Design issues are discussed.

Entities:  

Mesh:

Year:  2009        PMID: 20026569      PMCID: PMC2950808          DOI: 10.1093/jpepsy/jsp125

Source DB:  PubMed          Journal:  J Pediatr Psychol        ISSN: 0146-8693


  24 in total

1.  Condition severity and psychosocial functioning in pre-adolescents with spina bifida: disentangling proximal functional status and distal adjustment outcomes.

Authors:  J S Hommeyer; G N Holmbeck; K E Wills; S Coers
Journal:  J Pediatr Psychol       Date:  1999-12

Review 2.  Collecting and managing multisource and multimethod data in studies of pediatric populations.

Authors:  Grayson N Holmbeck; Susan T Li; Jennifer Verrill Schurman; Deborah Friedman; Rachael Millstein Coakley
Journal:  J Pediatr Psychol       Date:  2002 Jan-Feb

Review 3.  Family functioning in children and adolescents with spina bifida: an evidence-based review of research and interventions.

Authors:  Grayson N Holmbeck; Rachel Neff Greenley; Rachael Millstein Coakley; Joshua Greco; Jennifer Hagstrom
Journal:  J Dev Behav Pediatr       Date:  2006-06       Impact factor: 2.225

Review 4.  A model of neurocognitive function in spina bifida over the life span.

Authors:  Maureen Dennis; Susan H Landry; Marcia Barnes; Jack M Fletcher
Journal:  J Int Neuropsychol Soc       Date:  2006-03       Impact factor: 2.892

5.  Relations between family environment and adjustment outcomes in young adults with spina bifida.

Authors:  J W Loomis; J G Javornisky; J J Monahan; G Burke; A Lindsay
Journal:  Dev Med Child Neurol       Date:  1997-09       Impact factor: 5.449

6.  Psychosocial changes associated with participation in a pediatric summer camp.

Authors:  B G Briery; B Rabian
Journal:  J Pediatr Psychol       Date:  1999-04

7.  Cognitive-behavioral treatment of adolescent depression: efficacy of acute group treatment and booster sessions.

Authors:  G N Clarke; P Rohde; P M Lewinsohn; H Hops; J R Seeley
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  1999-03       Impact factor: 8.829

8.  Condition-related knowledge among children with spina bifida: longitudinal changes and predictors.

Authors:  Rachel Neff Greenley; Rachael Millstein Coakley; Grayson N Holmbeck; Barbara Jandasek; Karen Wills
Journal:  J Pediatr Psychol       Date:  2006-01-09

9.  Psychometric properties and normative data for the parent version of the diabetes independence survey.

Authors:  T Wysocki; P M Meinhold; A Taylor; B S Hough; M U Barnard; W L Clarke; B J Bellando; M J Bourgeois
Journal:  Diabetes Educ       Date:  1996 Nov-Dec       Impact factor: 2.140

Review 10.  Evidence-based psychosocial treatments for attention-deficit/hyperactivity disorder.

Authors:  William E Pelham; Gregory A Fabiano
Journal:  J Clin Child Adolesc Psychol       Date:  2008-01
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  6 in total

1.  Condition Self-Management in Pediatric Spina Bifida: A Longitudinal Investigation of Medical Adherence, Responsibility-Sharing, and Independence Skills.

Authors:  Alexandra M Psihogios; Victoria Kolbuck; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2015-05-22

2.  Pathways by which Maternal Factors are Associated With Youth Spina Bifida-Related Responsibility.

Authors:  Colleen F Bechtel Driscoll; Diana M Ohanian; Monique M Ridosh; Alexa Stern; Elicia C Wartman; Meredith Starnes; Grayson N Holmbeck
Journal:  J Pediatr Psychol       Date:  2020-07-01

3.  Stress and Coping in Youth With Spina Bifida: A Brief Longitudinal Study in a Summer Camp Setting.

Authors:  Diana M Ohanian; Tessa K Kritikos; Olivia E Clark; Kezia C Shirkey; Meredith Starnes; Grayson N Holmbeck
Journal:  Front Psychol       Date:  2021-08-02

4.  Effective peer-to-peer support for young people with end-stage renal disease: a mixed methods evaluation of Camp COOL.

Authors:  Jane N T Sattoe; Susan Jedeloo; Anneloes van Staa
Journal:  BMC Nephrol       Date:  2013-12-21       Impact factor: 2.388

5.  Exploring an Existing Weight Management App for Use With Adolescents and Young Adults With Spina Bifida: Usability Study.

Authors:  Colleen Stiles-Shields; Brittney Garcia; Kimberly Villota; Elicia Wartman; Adrien M Winning; Grayson N Holmbeck
Journal:  JMIR Pediatr Parent       Date:  2019-10-10

Review 6.  Spina bifida.

Authors:  Andrew J Copp; N Scott Adzick; Lyn S Chitty; Jack M Fletcher; Grayson N Holmbeck; Gary M Shaw
Journal:  Nat Rev Dis Primers       Date:  2015-04-30       Impact factor: 52.329

  6 in total

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