Literature DB >> 20001825

Being in- or out-of-sync: couples' adaptation to change in multiple sclerosis.

Helene Starks1, Megan A Morris, Kathryn M Yorkston, Robin F Gray, Kurt L Johnson.   

Abstract

PURPOSE: To examine how couples adapt to the challenges of multiple sclerosis (MS) and to identify possible risk factors for relational stress.
METHOD: Semi-structured interviews were conducted with eight couples to explore how participants defined and identified the strengths and challenges in their relationship, negotiated role changes and received external support. Conceptual frameworks on how families adapt to chronic illness guided within and across case analyses. We identified patterns in the couples' current responses to the demands and stressors of MS.
RESULTS: Two patterns of adaptation to MS were identified as being 'in-sync' or 'out-of-sync'. Characteristics of the four couples currently in-sync included having a relapsing-remitting type of MS, which proceeded at a pace that enabled both partners to maintain their social roles and identity, and a collaborative problem solving style. The four couples currently out-of-sync had a rapid progression of MS, loss of employment before retirement age, differences in personal styles that shifted from being complementary to oppositional in the face of increased demands and struggles with parenting adolescent children.
CONCLUSIONS: Clinicians can use these data to assess possible relational strain in couples with MS and identify families who might benefit from referrals to family therapy or other relational support.

Entities:  

Mesh:

Year:  2010        PMID: 20001825     DOI: 10.3109/09638280903071826

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  11 in total

1.  Perspectives on self-management in multiple sclerosis: a focus group study.

Authors:  Elizabeth S Knaster; Kathryn M Yorkston; Kurt Johnson; Kara A McMullen; Dawn M Ehde
Journal:  Int J MS Care       Date:  2011

2.  Ready or not: planning for health declines in couples with advanced multiple sclerosis.

Authors:  Hannah Chen; Barbara Habermann
Journal:  J Neurosci Nurs       Date:  2013-02       Impact factor: 1.230

Review 3.  [Coping with multiple sclerosis in partnerships: a systematic review of the literature].

Authors:  A-K Busch; R Spirig; W Schnepp
Journal:  Nervenarzt       Date:  2014-06       Impact factor: 1.214

Review 4.  Multiple sclerosis in men: management considerations.

Authors:  Riley Bove; Allison McHenry; Kerstin Hellwig; Maria Houtchens; Neda Razaz; Penelope Smyth; Helen Tremlett; A D Sadovnick; D Rintell
Journal:  J Neurol       Date:  2016-01-02       Impact factor: 4.849

Review 5.  Communication and aging.

Authors:  Kathryn M Yorkston; Michelle S Bourgeois; Carolyn R Baylor
Journal:  Phys Med Rehabil Clin N Am       Date:  2010-05       Impact factor: 1.784

Review 6.  Together from the start: A transdiagnostic framework for early dyadic interventions for neurodegenerative diseases.

Authors:  Sarah M Bannon; Victoria A Grunberg; Heena R Manglani; Ethan G Lester; Christine Ritchie; Ana-Maria Vranceanu
Journal:  J Am Geriatr Soc       Date:  2022-04-18       Impact factor: 7.538

7.  A feasibility study of a manualized resilience-based telehealth program for persons with multiple sclerosis and their support partners.

Authors:  Elizabeth J Halstead; Victoria M Leavitt; Damian Fiore; Kim T Mueser
Journal:  Mult Scler J Exp Transl Clin       Date:  2020-08-21

8.  Disability as an Interpersonal Experience: A Systematic Review on Dyadic Challenges and Dyadic Coping When One Partner Has a Chronic Physical or Sensory Impairment.

Authors:  Isabella C Bertschi; Fabienne Meier; Guy Bodenmann
Journal:  Front Psychol       Date:  2021-03-01

9.  Impact of Cognitive Impairment on Adults with Multiple Sclerosis and Their Family Caregivers.

Authors:  Elizabeth J Halstead; Justin Stanley; Damian Fiore; Kim T Mueser
Journal:  Int J MS Care       Date:  2020-05-15

10.  Personal identity and the role of 'carer' among relatives and friends of people with multiple sclerosis.

Authors:  Nic Hughes; Louise Locock; Sue Ziebland
Journal:  Soc Sci Med       Date:  2013-08-06       Impact factor: 4.634

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